Colorectal cancer and liver metastasis aged 36

Hello, I’ve recently been diagnosed with colorectal cancer and had emergency surgery to remove part of my bowel and the tumour due to intussusception. I’m now recovering from surgery but am waiting for MDT meeting to find out what happens next. I am aware that the cancer has spread to my liver and I’m feeling very scared. I only got married last year and I have a 12 year old and a 7 year old.

  • Hello Purple-Duck,

    of course you are worried, but you have to be mindful that you cannot change what is, but you can change how your body copes in the future and loading yourself with stress at the outset is not the ideal option. That  you will have a journey in front of you is a given, what is not is the body you will take forward to travel it. In short, it is the one thing left in your personal control  you can bring a difference too.How easy it is for someone outwith of your current issues to point out, so obvious and yet so easy to lose sight of. The earlier you can fix this in your mind the better.

    l went through the same diagnosis 11 years ago The good news is that in time ,treatments have improved leaps and bounds,you will benefit from this.Your MDT team will assess if surgery or chemo is the next step.. In my case 60% liver resection took place following chemo/radio, with bowel resection and post op chemo following.The liver recovered perfectly and caused no problems,it is an amazing organ

    Focus on healing yourself from your operation and leave your medical team to work out the correct future treatment. The one thing l can tell you is that you will find is that you are so much stronger than you currently may think you are, and in time you will come to see this is the case.

    Go forward with gentle steps, they will add up to distance in time,

    David

  • I was diagnosed in 2009 with colorectal cancer that had spread to the aorta ,I was offered palliative care but insisted I could fight it .I had chemo then radiotherapy the the op had a stoma for 6 months and the a reversal.i was in my sixties I am now 77 and still going strong.

  • I was also diagnosed 6 months ago with bowel cancer. I had the tumour  along with a foot of my bowel removed. Yesterday I was told it is now in my liver. I’m looking for hope please. I believe the doctors will have an MDT meeting next Tuesday. I’m not really sure what happens then?

    has anyone been through this please? 

  • Hello Stabb,

    yes l had bowel cancer go off for jaunt around my liver just over ten years ago.You would think it would stay in its designated space, but no, What comes next depends on where and how it is situated in the liver. Ideal would be a small sized single tumour sited on the outer tip of the lobe,well away from anything preventing surgical excision,with good margins around it to allow for complete removal without the risk of cancerous cells evading ejection. The liver is well capable of handling this,that is to say by expanding the remaining healthy tissue to compensate for the loss. l lost over 60% across two lobes including my gall bladder.Within a year l was back to normal and you would never know what had taken place.The bowel however was a different story

    After that it becomes problemmatical, too close to sensitive areas, multiple spots too numerous for safe surgery,this is where chemo will come in. Your MDT will look at all the revelant information they have to hand and make the decision as to the best course of action to follow.

    l am no expert, but l believe its better to deal with bowel cancer spread to the liver, than liver cancer itself. l think you should not get ahead of yourself and await the outcome of the meeting andunderstand that treatment options have improved immensely over the previous years.l am happy to answer any further questions, but bear in mind each individuals cancer is just that,

    take care,

    David

  • Thankyou David. That has given me a little bit of hope  

    I’ll let you know what they suggest. I’m hoping they will be able to take it out. 

    many thanks again 

    Angela

  • Offline in reply to Stabb

    Unfortunately I was given the news today that they can’t operate because there are to many lesions. I sm hoping and praying that they can use something to put it on hold for as long as possible   

    Has anyone experiences this? 

  • Hello Angela,

    this news will have come as a hammer blow,never easy,but an even bigger blow considering the timing. My colonoscopy confirming a tumour was on xmas eve, and the biopsy confirmed as cancerous on New years eve,so l can begin to understand the enormity of it all.

    So the process now begins of finding the chemo combination that will control or better still clear these cancerous lesions.l feel your agony and can only urge you to hold on to your mental strength as best you can for the difficult journey ahead of you.

    Overstressing yourself just hands your foe another advantage you cannot afford to spare. Your fightback begins shortly,you are very much in my thoughts along with others that find themselves in the same horrible predicament.

    l hope you can move forward gently using a quiet,stubborn, determined approach to use as your focus to move yourself to firmer ground once more.

    travel well along this new journey,

    David

  • Thankyou soo much David for your Great words of encouragement.


    I’m waiting until after Christmas to tell my Daughter and Son, they are grown up now. 40 snd 30 respectively 


    As you say not great timing to be giving this news to your loved ones. 

    if I may I would like to continue with this chat. I received an email tonight from Oncology with my first appointment on the 6th January. I should know a bit more then

    I can post what they have planned for me after that.

    i am trying to keep strong, but i lost my husband to Cancer 4 years ago, its very hard!!

    keep well

    Angela

  • Hello Angela,

    it occurs to me that you are named after the Angels,l hope yours will gather around you closely and help guide you forward to firmer ground.Reading of the loss of your Husband tells me that you are no stranger to a hard struggle and it seems that once again you will need to find that mental armour you laid down some years back.

    Carrying the cancer burden can be the loneliest of places even when you are surrounded by so many that love you, and you find there are so many things that you would struggle to speak of with them for a number of reasons,so if you think conversing with myself would be of help, then l will always reply, as a distant stranger who has trodden the same narrow dark path that hopefully eventually leads to a personal salvation and new life.

    You will know of what l write and that there is no sugar coating or rose tinted glasses with which to see the way, just an unremitting slog and desire to see what lies beyond your paths horizon,

    small steps, but always one in front of the last,can over time add up to a great distance,stay safe and as calm as is possible,

    David

  • Hello David

    i totally agree with all you say, and yes I really do know what it’s like to go through the hard struggle of Cancer and living with it. My husband put up a very good fight. 

    As you say it is a very lonely place carrying and living with the burden of Cancer, and most of my anxieties are the fear of telling my children and Family and how they will cope with the news, especially my wonderful children.

    i like the way you write your reply, no sugar coating! So yes I will continue to post and ask questions if that’s ok?

    Happy Christmas Eve. I’ll write again after my consultation with Oncology

    Angela