Waiting breast biopsy results but consultant confident it will be positive. I'm so scared of what comes next and need someone to talk to who understands

Hi all , 

Am absolutely terrified . Thought I found a lump 6 months ago that seemed to come , go then came back and stayed . Went to GP 3 weeks ago who didn't think it was sinister but referred me to breast unit . Had appointment on Monday and consultant after seeing mammogram and scan is confident it is sinister .. Now just waiting for biopsy results .. Lump is somewhere between 1.3 & 1.5 mm according to the images.  Am just so scared of what comes next and desperately need someone to talk to who understands x

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  • Hi butterflywing

    Firstly I'm so sorry to hear of your diagnosis.  I went through something similar in 2023.  I found a lump and was referred to the breast unit and it was a whirlwind from there once the biopsy results came back positive.  I was convinced it was a cyst (as I'd had one before in the same location) so didn't take anyone with me for the results appointment.  Needless to say it was a bit of a shock.  Mine was about 3cm in the end but it was triple negative (non-hormonal) with no real understanding of how it happened as it doesn't run in the family. 

    Once the results came back, follow-up appointments were very rapid and a treatment plan was soon in place.  I had 6 rounds of chemo, 7 rounds of immunotherapy followed by a lumpectomy (which by the time the chemo had finished, they couldn't find any cancerous cells so took tissue to make a clear margin).  A couple of months after the surgery I had 9 rounds of radiotherapy.  I'm happy to say I've been clear now for just over a year and life is very much back to "normal".  

    I know it's scary but once the diagnosis is confirmed, you will be offered so much support from your breast cancer nurses, oncologist and treatment team you won't feel alone.  Sadly there are lots of ladies on here that will have been through something similar, and they will all support you too.  

    Good luck with your biopsy results.  It sounds like it's been caught early as it is a small lump, so don't think the worst yet.  Just listen to your consultant and the professionals but don't be afraid to ask questions. 

    Am here if you need to talk.

    Carol 

  • Hi Carol ,

    Thanks for replying .. My head is all over the place ! One minute I'm relatively positive  then something hits me and I start to believe I'm going to be given the worst news possible and I won't be here to see my grandchildren grow up . I worry I'm going to loose my hair ( stupid I know considering the bigger picture ) but every thing seems so massive at the minute.  I'm up and down like a yoyo with a big black cloud of fear hanging over me . 

  • Yes, Butterflywing, I know what you mean about the relief from the results and then it seems once we have the details, the brain kicks back into gear worrying about the next steps. I think for me its feeling out of control and not feeling comfortable sitting with the unknown. So, there is a lesson for me in trusting the surgical team and in my God to get me through this, but that isn't always easy for me to do, some days are better than others in that regard.

    Thank you too for your offer to talk, that is much appreciated and also the offer applies to you too - anytime your head is everywhere and you want to reach out, I will answer your messages :) xx

  • Hi Vivaldi ,

    I know exactly what you mean about feeling out of control  and like you I struggle with it . Somedays  I'm quite positive and the next day I burst into tears at a drop of a hat and I'm back to feeling nothing but worry and despair and asking why me. 

    As you say it is definitely a lesson in trusting the surgical team and having faith in God and the power or prayer .

    Do you mind me asking when your operation is ? Mines Jan 5th and I'm terrified to have it but even more terrified not to .

    I wish I could find away to contact you privately,  I feel it would be lovely to have someone to go through this journey with who was going through the same thing xx

  • Hello again 'B', yes my mastectomy is on 8th January so just three days after your surgery! What kind of surgery are you having? I have two tumours one is a grade 3 triple negative measuring 6mm and the other 9mm tumour is ER positive but HER2 negative. I am 73 in January and am worried that I shall be fit enough but the surgeon says I will be fine, so I have to put my faith in her. My community are all praying for me so that feels good but being terrified is something I will be as the days get closer. And yet I was also thinking how many good things happen everyday as well. The kindness and understanding of doctors and nurses, new friends such as yourself offering support via this forum and old friends who are prepared to go the extra mile to do whatever is needed - what a blessing that is and how lucky we are to have that?

    So, just be kind to yourself....and I say that to you and to me, its what our bodies need right now... xx

  • Hi V ,

    I have a tumour somewhere between 1.3 and 2 cms in size  ( the mamogram said 1.3 ultra sound said 1.5 and the consultant thought 2cms when he examined me) . Mine is grade 2 ER + PR -  HER- . 

    I haven't told my wider circle of friends about my diagnosis, I've only told immediate family and a couple we have been friends with for over 30 years  so having a friendship like yours is very special and I feel blessed to have found you .

    Can I ask what area of the country your in ? x 

  • I had a lumpectomy five days ago with a sentinel lode biopsy and now there is fluid i believe called a seroma ,I was wondering if any body else has gad this happen ?

  • Hi Ruggles ,

    Sorry I can't answer your question as I'm not having surgery until Jan . I was just wondering how you found surgery and the initial recovery  ? x

    1. I did not find any of it a problem ,very little pain ,the only concern I have is this fluid ,but I do panic easily .I don't know my treatment plan yet it will take about three weeks i am told 
  • Am glad your op went well and relatively painless .  I've literally just got off the phone with the post surgery physiotherapist ( pre op appointment) and she told me if I develop a seroma it's nothing to worry about but to give the breast care nurse a call if I'm worried  . Not sure if that helps you on anyway x

    • Thankyou for your reply that has reassured me ,I am going to try and for get about it all and enjoy the holidays .I hope you can manage to enjoy it all too 
  • Thankyou Ruggles ,

    Merry Christmas to you xx

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