High Grade Glioblastoma - mum has just been diagnosed. Hoping to connect with others who have experience with this type of cancer

Mum has just been diagnosed with a high grade glioblastoma. 

She had surgery a week ago where they removed a lot of the tumor.  Histology reports are that it is aggressive & malignant. 

They're offering her treatment, though we don't know what that will entail yet until her appointment at the local oncology department.  

I guess I'm looking for any other experiences with this type of cancer.  Good or bad?  I can google until I'm blue in the face, but, I think I need personal experiences to help me understand this. 

This is completely out of nowhere.  She's not even 70 yet, in good health (other than the evil lump in her head) and this has completely thrown us.  

I don't know what to do to help her.  I don't know what to do to help my Dad.  I don't know what to do to help my sister.  I most certainly don't know what to do to help myself. 

  • Hi KyziaDuck, 

    I am so sorry to hear your mum has been diagnosed with a high grade glioblastoma I can imagine the diagnosis was a bit of a shock and I hope that she is recovering well from the surgery. It's so sad that the histology reports flagged that it is aggressive and malignant. I hope that you find out more soon about the kind of treatment that is available to her and that she will have an appointment soon. It is normal that this has completely thrown you as it was totally unexpected and she was in good health so it seems to have all come out of nowhere as you said. 

    You've done the right thing to come here and try to hear from personal experiences which is not something you would get from googling and that's what this forum is for: enabling you to connect with others who have had the same diagnosis or who have looked after a loved one with high grade glioblastoma. 

    The powerlessness you describe is something so many of our members who are going through or have been through the same thing will be able to relate to and understand. There is no 'one size fits all' rule to help your mum, your dad, your sister or yourself as all family dynamics and interactions are different but there is useful information on our website for Family, friends and carers which I hope will give you some good tips on how to support someone with cancer without forgetting - and this is crucial too - to take care of yourself. What is going on at the moment is rather overwhelming and it's important to remember to look after yourself too during this difficult time. 

    I also wanted to mention a couple of members who posted recently who have themselves had a glioblastoma diagnosis or have a loved one who has been diagnosed with this. For example,  posted this thread on their father's Grade 4 glioblastoma diagnosis and will know exactly how you feel at the moment. Another member's thread I wanted to make you aware of is  's post on their own recent glioblastoma diagnosis so don't hesitate to respond to any of these threads if you would like to do so. These are just a couple of examples and there are many more and if you type the words 'glioblastoma' in our forum search, you will be able to see all past relevant threads and feel free to respond to any you feel you would like to connect with. 

    I hope that you will hear from others who have been affected by glioblastoma and that they will be along shortly to share their story with you. 

    Best wishes to you and your mum during this tough time, 

    Lucie, Cancer Chat Moderator