Mycosis fungoides stage IB

Hi I was just wondering if there's anyone that's experiencing extreme dryness due to having mycosis fungoides Stage IB ? Ive had all the light treatment, ive currently finished the max dose of Bexarotene which in my opinion done nothing, my next stage is radiotherapy which im hoping will help. I can deal with the redness as awful as it looks but can't get my head round the dryness. Ive used every cream given to me, I buy a pure glycerin and put on me but that doesn't even work. Not only is it physically doing me on its mentally aswell and hard to explain to people. Ive been sleeping on the sofa come March for a year as I feel bad for my wife waking up next to me and my dry skin. I dont know what to do anymore. Thankyou to anyone reading 

  • Hi PPC,

    Welcome to Cancer Chat. I'm sorry to hear that you're struggling with dryness - this sounds like a challenge and I can understand it must be difficult if nothing seems to be helping.

    It sounds like you may have discussed this with your doctor already, but if not, do see what they suggest. Or otherwise, mention to them that the issues are persisting and how difficult it is for you, to see if there is anything else they can suggest.

    You are also welcome to talk things through with one of our nurses if you'd like to. You can do this either by posting in the 'Ask the Nurses' section of this forum, or by calling freephone 0808 800 4040 - Monday-Friday, 9-5.

    In the meantime, hopefully you'll get more replies to your post here soon - particularly if others with similar experience see it.

    I hope that this issue can ease a little for you soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator