I’ve recently been diagnosed with Esstential Thromocythaemia, a rare blood cancer. I wonder if there is anyone else living with the condition who would be willing to chat?
Hi Esther, ive only just joined this group for other people's insight into ET.
My husband was diagnosed on 2nd April this year. Life changing is putting it mildly. We had no idea that there was anything more serious than a course of iron tablets needed. He went in on his own to the appointment and was told he had a blood cancer.
Our son drove him over to the appointment as my hubby had taken epilepsy in 2025 and had to give his driving licence in, Thinking that it was something like he was low in iron, our son just sat in the car waiting on him.
I had fallen the week before and was in hospital. Other than that, I would have been with him.
How are you coping, do you have support? Have you had much support from this page.
I have a very rare complaint in my lungs and I've searched the Internet high and low and there is no support for it online. I have been ill 33 years. I think this group and groups like it are amazing. People need this. Just to know they aren't on their own
If you ever need to talk I'm here. I know im not the one who's ill but I am willing to listen and support you if I can. Maybe we can support each other.
Hi Esther, ive only just joined this group for other people's insight into ET.
My husband was diagnosed on 2nd April this year. Life changing is putting it mildly. We had no idea that there was anything more serious than a course of iron tablets needed. He went in on his own to the appointment and was told he had a blood cancer.
Our son drove him over to the appointment as my hubby had taken epilepsy in 2025 and had to give his driving licence in, Thinking that it was something like he was low in iron, our son just sat in the car waiting on him.
I had fallen the week before and was in hospital. Other than that, I would have been with him.
How are you coping, do you have support? Have you had much support from this page.
I have a very rare complaint in my lungs and I've searched the Internet high and low and there is no support for it online. I have been ill 33 years. I think this group and groups like it are amazing. People need this. Just to know they aren't on their own
If you ever need to talk I'm here. I know im not the one who's ill but I am willing to listen and support you if I can. Maybe we can support each other.
