After my last appt I mentioned a cough and breathlessness , which I had put down to a virus; fatigue which I put down to looking after my husband as he’s been diagnosed with Parkinson’s Plus, which is a fasting progressive condition. I’ve also been dealing with incorrect medical records, he nearly died following a traumatic catheter insertion, so my stress levels have been sky high. I had a PET scan which has shown a 5cm mass in my chest, where the trachea divides to go into the lungs. I had a biopsy the following week, then consultant rang the next day to start me on steroids. Saw him on the Tuesday, along with my 3 children and he’s decided not to wait for biopsy results, as he’s assuming it’s gone from low grade to high. He’s going with the most common lymphoma large B cell, for now. Chemo and antibodies were given on Thursday, all good. I’m feeling a bit out of sorts now and yesterday I used my husband’s toilet spray as a deodorant.
Im feeling really guilty now, as on the day of my treatment my son and I were just about to leave when my hubby fell over. Chris picked him up, cleared up his breakfast, checked he was ok and we left. It as only yesterday that I saw the grazes and bruises he had and not until last night did I realise I should have had him checked over, as he’d had a cataract op the day before. He assured me his sight is ok, but again it’s really affected his confidence and I feel bad that I’m having to put myself first for a change. We have lots of support around us, I have arranged a care assessment for us for later this week. My daughter saw how much I do for him, so she’s looking to see if he will qualify for nursing care.
mom so glad there are apps to sort meds, as I have a crate full to take on different times during the cycle
Can I ask how people have coped caring for someone and any tips on treating side effects of chemo please. I have researched but personal stories and tips I find work better xx