Recently diagnosed with Breast Cancer - I live alone. Is anyone else in this situation and would be happy to share their thoughts and feelings?

Hi all, just wondering if there is anyone living alone (or not) with a diagnosis and would like to share feelings and thoughts? I live alone most of the time (daughter comes home from uni throughout the year) it’s a scary time so it’s quite comforting to read some replies from lovely people further along on their journey, the mind goes into overdrive with worry and panic…. I’m not sure I’ve fully accepted the diagnosis yet, surgery is in 4 weeks, have been told likely will have radiation treatment after surgery.  I do hope we can all stay as strong as possible and fight this awful rotten thing we have to deal with, love prayers and good wishes to all xx

Parents
  • Hello. I'm not further along than you but instead in the same boat.  I was diagnosed with DCIS on Thursday, I have to have more biopsies to determine what surgery options I have and then if I need radiation etc. But have been told that it'll all happen quite quickly. 

    I also live alone, I've created with my best friends a specific group chat to talk about it and related rants.  So that or normal group chat is for the usual things if sending each other funny stories, memes etc. And it also allows them to check the chat when they have the mental capacity etc. 

    I've also taken to making plans more after work to see people who that whilst I live alone using my support network. Even if it's just silent company watching TV or a film. 

  • Hi xt1n. Thank you for your message, I think what you have done is a good idea, making plans including your support network.  I am learning that the treatment of DCIS and positive outcomes going forward is very good which is reassuring.  My DCIS is high grade and about 4mm, lumpectomy booked for October 1st so not long to wait.  My support circle is quite small (but mighty) I do spend quite a lot of time in my own company.  There seems to be a great source of words of experience comfort and support on here which i think will make the journey easier.  Look after yourself along the journey and please share more about it if you feel you can.  Take care, Lorraine xx

  • That's good that is not a long wait for you, waiting is the hardest part. 

    I've had my other biopsies done yesterday. I have a 75mm area of calcification of which we know, some atleast is definitely high grade DCIS. The biopsies I had yesterday are to test the rest of the area to understand how much of it is DCIS. As depending on that, my surgery options change. 

    I too have a small but mighty support network. I'm also fortunate that both my mum,  and my dad's and step mum are fairly local to me. 

    And yes DCIS has lots and lots of positive experiences to read on here. Similar to you I find that comforting. Along with all the lovely people who reach out when you post out quite something being very supportive and sharing their own stories etc. 

Reply
  • That's good that is not a long wait for you, waiting is the hardest part. 

    I've had my other biopsies done yesterday. I have a 75mm area of calcification of which we know, some atleast is definitely high grade DCIS. The biopsies I had yesterday are to test the rest of the area to understand how much of it is DCIS. As depending on that, my surgery options change. 

    I too have a small but mighty support network. I'm also fortunate that both my mum,  and my dad's and step mum are fairly local to me. 

    And yes DCIS has lots and lots of positive experiences to read on here. Similar to you I find that comforting. Along with all the lovely people who reach out when you post out quite something being very supportive and sharing their own stories etc. 

Children
  • Hi 

    I was diagnosed on 28th August with grade 2 breast cancer of no specific type with intermediate DCIS, it is hormone receptive. This was picked up during my routine mammogram. I’m 53 and live with my husband and son. Last year I was diagnosed with probable kidney cancer which was too small to biopsy. I waited six months for surgery (slow growing) and the tumour turned out to be benign. Two weeks later I was recalled and had the biopsy on my breast. The elation turned to numbness, 

    I am having a lumpectomy on 8th October and all being well I’ll need radio but no chemo. I’ve carried on at work (I’ve actually only just returned after my kidney surgery) which has been a good distraction. My husband is behaving like a have a paper cut!! I joined breast friends on fb but the negative stories are just too upsetting. I’d love to connect on here

    Lisa 

  • Hi Lisa

    That was positive news for the kidney tumour.  Now you have breast diagnosis to challenge you. I’m sorry to read your husband is thinking you have a paper cut.  I’ve read in a few places that close family and friends are sometimes at a loss to know what to do or say in case they get it “wrong” so to speak.  I can imagine it may leave you wondering where the support is.

    i don’t think it’s a good idea to read negative stories, once we have a diagnosis I think we should try our best to be positive and take care of ourselves as much as possible.  My circle of support is very small (quite mighty though) so I will be available on here to message chat if you would like that? 
    Not long for your Lumpectomy, mine is booked for 1st October, My plan after surgery is to recover and rest until I feel I can do some gentle walking (a close friend is taking me into hospital and staying with me at home overnight) Will you have some help at home after your surgery? 

    A bit about me, turned 60 in July, kind of semi retired/unemployed at the mo,we recently moved house so I have a garage full of boxes to keep me busy, I have one daughter who’s at uni and we have one cat and that’s us, initially I was a bit shocked at my diagnosis but after reading lots of positive stuff on here I feel much more reassured.  A friend of a friend had a very similar diagnosis to yours and she has been free of any reoccurrences for 5 years now after radiotherapy and medication.  I do understand we are all dealing with varying types of this rotten thing so we should come on here for support and comfort from everyone, we can all be strong together and take each day as it comes, look after yourself and take care, Lorraine xx

  • Hi I'm same as all was diagnosed on Monday gone.  Not sure when surgery is but 3 -4 weeks.  I'm on my own in Ireland although from UK.  I have friends at work and my rescue dog Sandee.  Its difficult but I'm wishing us all well.

  • Sorry to hear of your diagnosis rier. When sre you expecting your treatment plan? 

  • Hi Lorraine, Xt1n, Svw & Lisbrum,

    A very warm welcome to our forum.

    I am sorry to hear that you are all waiting for results or surgery.  DCIS is usually very treatable and there are a number of positive stories on this forum. As Lorraine says, the best wat to cope with your diagnoses, is to be as positive as you can about it - not easy, I know! I lost my mum to breast cancer 29 years ago. She had a very challenging cancer journey and I dreaded facing the same. However, when my turn came 19 years later diagnosis, treatment and aftercare had all improved tremendously. There was just no comparison between what we both experienced. It is now 16 years since I was first diagnosed. I had a lumpectomy, but within a year I discovered a second cancer in the same breast and pre-cancerous lesions in the other one. I had a double mastectomy second time around and I still lead a busy and fulfilling life. It is a fact that a lot more people are now living with cancer than dying from it!

    Now that you have found this forum, you never need to feel alone, as there is always someone here to share their experience , give advice or simply to support you.

    Please keep in touch and let us know how you all get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine , so good to hear of  your positive outcome. I have now been diagnosed with invasive bc HER2 positive grade 3 so very worried. However, the forum posts are helping. Thank you for being there for us all. I called and emailed the local breast cancer support group too yesterday , but no response at all so far. Kind regards Sue 

  • Hi Sue,

    I am sorry to hear about your diagnosis, but don't lose hope. For as long as your cancer is treatable, there is every chance that you'll beat this.

    Kind regards. Did you call and email your specialist breast nurse or a cancer support group? They can be very busy, but they usually get back to you fairly quickly.

    Do please let us know how you get on.

    Kind regards,

    Jolamine xx

  • The consultant said lumpectomy and removal of sentinel nodes.  He said 3-4 weeks so it’s a week and a half ago

  • Offline in reply to Svw

    I have the same as you. It’s really scary but we have to stay positive we will beat it

  • Offline in reply to rier

    Hi  , hope all goes well for you and yes we will beat this thing! I was in a state of high anxiety this morning (always gets better as day goes on) so I’ve reached out to a local support group and also MacMillan. Now off to the south coast for a few days with friends. Distraction certainly helps doesn’t it? Will then see consultant re treatment plan after Tuesday.