After 43 hours in A&E, I finally found out I have lung and brain cancer. Currently in hospital waiting to find out how it will be treated. Feeling so scared

on Sunday night I was taken to a&e with another ‘stroke’ the nurses was great and said they would look at my mri results as they had been taken just a couple of days before, when I was in a&e and told i had had a stroke, just 51 years old. They came back and said there was multiple issues with it so had to be repeated. At 1 am Monday morning a dr came in to tell me the news, I hadn’t had any strokes, the stroke like symptoms was actually swelling on my brain caused by lung and brain cancer, my brain couldn’t  cope with it as I also suffer with PTSD and fibromyalgia I wanted to go home and process it but thankfully my ex husband was with me and told me it was a bad idea as apparently if it happened again it could be fatal! I stayed and am receiving ‘treatment’ while I wait for the specialist team to come and tell me how this will be treated, I have asked if it’s treatable but apparently with the brain all they can do is ‘manage it’ and try to keep it under controand ‘smal’ they couldn’t even say how ongi have, the only good thing is considering it is stage4 there doesn’t look to brand spores from the lung and the cancer is inthe top left lung. I don’t get how o never noticed any real problems till the ‘stoke like ymptoms’ appeared  I’m relying on my caustic humour and sarcasm to get through but it’s so hard. I’m petrified of what is going to be said about treatment but know I have to try and stay strong and somehow positive, but it’s hard when I burst into tears and the thought of this death sentence is clouding over me that even writing this is so painful and knowing I will need to tell all my friends is breaking my heart

  • I'm so sorry to read how long you were in A&E and for the the news that you were given.

    It must have come as quite a shock to receive this diagnosis, but I and the rest of the Cancer Chat community are here for you SarP, and I'm sure you will receive a lot of support and advice from our members soon.

    I hope you have now found out what your treatment will be but if you have any further questions or concerns you can give one of our cancer nurses a call. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they will do all they can to help and provide you with further information and/or advice.

    Be kind to yourself SarP and remember, with us by your side you will never be alone on this journey.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi SarP, so sorry to read about your news, that’s a terrible experience to go through. I’m glad your ex was there and was being supportive. I hope your friends are too once you’ve told them. Which I understand you’re dreading, you probably just want it to all be a bad dream, and not to have to go over it with everyone. Maybe you’ve got one friend who’s really calm and easy to talk to, you could tell them and let them tell other people initially. Just a thought. 

  • Thank you for your kind words, I am still in hospital as I have to have more scans as something has also shown in my liver too, I’m lucky as the people I have around me are quality over quantity and thankfully still talk ‘normally’ if you get what I mean? Everyone is shocked and none of us really know what to say so we all stumble at times and ‘sit in silence’ but it seems to be helping all of us to get through which is what matters. I’m making sure I go out a few times a day for walks (in the hospital grounds) even if it’s just downstairs to try and help my mental health etc 

    I just don’t really know what to say etc a lot of the time 

  • I’ve gradually been telling people but trying to wait to hear what’s going to happen before I tell everyone as I just know there’s bound to be questions and I also want to try and be able to cope and not get to overwhelmed. 
    I do have my bestie who suffers with the same mental health challenges as me so we’ve shared many stories etc over the years and am supporting each other through this to make sure we both stay well. 
    I’m just lucky that the people I have around me are quality people that only want the best for me and will make my wishes happen 

  • That strategy of waiting to tell people til you have more information makes a lot of sense. Likewise getting out of your room for a walk. Hopefully you’ll get home soon so you can properly get outside. Sorry to read about the further scans needed for your liver, fingers xd it turns out to be nothing.

  • Thank you, the liver sounds ‘hopeful’ as they did say they wasn’t too concerned about it so I’m looking it’s a ‘good’ patch /blur or something, hopefully I’ll know more in a couple of days but til en I’ve just got to stay ‘calm’ and try to find any positives etc to keep going, I am literally living in hope that I have years and not months to live,  I know I’m stubborn and determined so hope y it will help, I’m also positive that I don’t have any addictions or drink so hopefully it will mean I have more choices for treatment