I've just been diagnosed with malignant pecoma (a very rare type of sarcoma). I just wondered if there was anyone else out there with the same/similar in order to share experiences? There is no local Sarcoma UK support group near me. Thanks.
Hi Jolly-percy I was diagnosed with a soft tissue sarcoma about three weeks ago. I live in north East Lincolnshire but the sarcoma unit is in Sheffield. They have a support group there, they contacted me a few days ago explaining what they do. I have been told I will need radiotherapy and then surgery but due to other health issues surgery cannot go ahead until they seem me fiit enough. Wishing you all the very best in your journey ahead.
I had retroperitoneal liposarcoma and had surgery to remove that, with some other organs, in November 2023, having been diagnosed the previous month, I send my support to you and hope they will be able to go head soon.
I had retroperitoneal liposarcoma and had surgery to remove that, with some other organs, in November 2023, having been diagnosed the previous month, I send my support to you and hope they will be able to go head soon.
