Hi Jolly-percy  I was diagnosed with a soft tissue sarcoma about three weeks ago. I live in north East Lincolnshire but the sarcoma unit is in Sheffield. They have a support group there, they contacted me a few days ago explaining what they do. I have been told I will need radiotherapy and then surgery but due to other health issues surgery cannot go ahead until they seem me fiit enough. Wishing you all the very best in your journey ahead.

Hello Graemefrank. I really hope you are able to start some sort of treatment soon. Finally getting a diagnosis (one way or the other) was a big relief for me, although mine is currently inoperable. There is a drug which aims to shrink it but am waiting to hear if it is safe for me to take it due to other things going on. So it's not straight forward but I'm sure we will both get there :-) Take care & wishing you all the very best too!

I had retroperitoneal liposarcoma and had surgery to remove that, with some other organs, in November 2023, having been diagnosed the previous month, I send my support to you.