Its exactly 1 year to the week I had my Encapsulated Papillary breast cancer removed. At the time I was told it was the best cancer to get, as it was rare and was also unlikely to spread. 

A month ago a lytic lesion was found in my pelvis (iliac bone) incidentally on a CT scan of my urinary tract. 
2 weeks ago 2 mucinous tumours were also found  one in each lung on another CT scan with contrast. 
Today I had a full body PET scan and I think they have found more cancer, however, no one would tell me definitively. It will be another 2 weeks before we get any information again, every time I see my breast surgeon, it’s worse than the last time! 
Surely a PET scan should have been done straight away? I would have had the results back by now? I don’t understand??

My surgeon also thought that the lung cancer may be a new primary?? Can you be that unlucky?? 

None of these lesions could be seen on scans for other reasons in 2023 and all the lesions are small.

Im really struggling today with the lack of information, my brain is going to really dark places and it’s difficult to cope. How do we stop ourselves getting our affairs in order?? I’m asymptomatic and this is just so very surreal to me right now, I feel I am on a very weird roller coaster of emotions from angry to totally miserable  

Anyone else had anything similar?

thanks for reading x