Delayed bone marrow transplant for multiple myeloma

I'm 52 years old and was diagnosed with multiple myeloma in February. I responded really well to treatment with minimal side effects. I had 4 rounds of chemotherapy Dexamethasone, Lenolidomide and Bortezomib. My myeloma is below the maximum minimum trace limit of 2%. 

I'm seriously considering delaying the bone marrow transplant until after the first remission. I feel strong as an ox , but at the same time feel that I'm at my weakest after the initial treatment. Weight gain and high blood pressure . 

Living life for the moment I want to get strong and fit , live life a little and feel the sun on my face . If I undergo the transplant I'd have spent pretty much 12 months sitting on my sofa vegetating and it's causing me some mental issues .

Symptoms wise I'm lucky . A solitary crushed vertebrae in the upper back that feels strong. Allergic reactions (hives) and gout which has pretty much kept me house bound . 

If I delay the transplant i can live a little and be the best version of myself in the coming years and attack it head on . I guess I'm asking if anyone else has done this ? 

  • Hi Paratus,

    Welcome to Cancer Chat. It sounds like a tricky decision and I understand your reasons for considering a delay.

    Do of course be sure to discuss this with your doctor, so they can also advise - or at least listen to your reasoning.

    In the meantime, if others have had any similar experience then hopefully they'll see your post and send a reply.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator