I have been receiving Pembro for 6 months for stage 3 melonoma. I get very tired after doing even low level activity and I have a very dry mouth, so I have frequent rests and a nap in the afternoon, I also have water handy at all times. When I go out I take a small bottle of water with me, a also use chewing gum, not something I normally do, and find this helps. I also have a rash in some areas. All in all it’s not too bad,just get a bit fed up with it. I had difficult making the decision to have it due to the horrendous side effects we are told can happen but I think they are rare. I believe now it was the right decision. It probably take a few weeks for these side effects will start but you will be lucky if you don’t get any. Besst of luck with it. Let me know how you get on.
Hello Tony82, I am seeing the oncologist today to discuss starting this treatment for the melanoma, pembo has been the one mentioned by the cancer nurse.
I am so unsure about starting it because of the side effects some sounds extremely serious.
It was good to read your post, I know people vary with side effects.
I hope it helps. They do seem to monitor you quite carefully. I have a blood test and a telephone discution or face to face a few days before my 6 weekly treatment. You can discuss what side effects you are having and if they think it necessary will stop the treatment. They do scare you don’t they but I think they have to give you the worst case scenario no matter how unlikely. Incidentally have you looked up the cost of Pembro, even to the NHS, it’s horrendous.
I hope it helps. They do seem to monitor you quite carefully. I have a blood test and a telephone discution or face to face a few days before my 6 weekly treatment. You can discuss what side effects you are having and if they think it necessary will stop the treatment. They do scare you don’t they but I think they have to give you the worst case scenario no matter how unlikely. Incidentally have you looked up the cost of Pembro, even to the NHS, it’s horrendous.
