I am so sorry to hear about your mum's CMML diagnosis. It can be a lot to take in especially when receiving the diagnosis of a rare blood cancer like CMML and there will be a lot of unanswered questions going through your mind at the moment and it's really hard to know what is coming next and what to expect. It's worth looking at the information we have on our website on CMML which looks at the different types of CMML, available treatments and where to get support to help you cope. You will find there as well details of organisations you can reach out to which also offer help and support like Leukaemia Care or Blood Cancer UK.
Feel free also to get in touch with our cancer nurses on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm and they will be happy to answer questions you might have about CMML and about the next steps ahead.
I also wanted to let you know that you are not alone and there have been other members of our community who have posted before about CMML and who were also on the lookout for additional information on CMML - I will mention a few names just so you can connect and reply to these threads if you wish to do so. For example, Bonny2024 posted this thread last year about their CMML diagnosis and SueinDevon posted this thread on CMML and MF and 6HQ also posted a thread about looking for information on CMML and would therefore also be a good person for you to exchange thoughts and CMML experiences. I hope that you will get to chat to others here who have been affected by CMML and who will be happy to tell you what might happen next or what to expect in the coming weeks and months.
How has your mum been feeling since the diagnosis? I hope that she is ok and that she finds out more soon about her treatment options.
