Hi
After many months I have now been diagnosed with a stage 3A melenoma also found a small cell in the sentinel lymph node
now removed
Waiting for PET scan and MRI scan which could be a few weeks
then Oncology
Hard to deal with the wait
Hi
After many months I have now been diagnosed with a stage 3A melenoma also found a small cell in the sentinel lymph node
now removed
Waiting for PET scan and MRI scan which could be a few weeks
then Oncology
Hard to deal with the wait
Welcome to the forum Salpal1 although I'm sorry to hear you've been diagnosed with melanoma.
This must be a very difficult time, especially whilst you wait for further scans, but our members are here to support you and I'm sure it won't be long until some of them stop by to share their experiences and advice.
You can find out more about stage 3 melanoma on our website, but if you have any other questions or concerns you'd like to discuss with someone, then do give our cancer nurses a call. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they'll do all they can to give you the answers you're seeking and support you during this anxious time.
Do keep posting if you find it helps Salpal1 and remember that we will always be here for you.
Kind regards,
Steph, Cancer Chat Moderator
Thanks for your help
Bit concert my friends who have been diagnosed with cancer have had scans and treatment plan with in a few weeks .
They are a a bit surprised at the timescale .
I do understand they have so many people who need urgent scans .
My pet/CT scan booked
My MRI scan has been requested being looked at after 2 weeks told it could be a little while
I am concerned if I need treatment it will be delayed .
The Consultant said the melenoma was 0.9 and taken out
The one node removed had a single tiny cell
.
Any one had to wait for scans and feel this way .
Yes, sadly melanoma patients are currently having to wait far too long for scans & surgery. You will definitely be given drug treatment once they have all the scans back & know if there has been any further spread beyond the lymph node. The good thing is that the amount of melanoma in your lymph node was tiny so it lessons the chance it may have travelled further.
I will send you a friend request so we can chat by private message, especially regarding the hospital you are being treated at (we can't mention individual hospitals on the forum but, in a private message, I can tell you the Centres of Melanoma Excellence close to you should you later wish to transfer your care if you are unhappy).
Drug therapies used now in melanoma treatment are showing great results so hopefully your treatment will start soon & it will be successful. Good luck and please let us know how you get on,
Angie (Stage 3 melanoma patient since 2009)
Hi
Had my pet/ct results from scan on Monday Cancer nurse called no metastasis found said good news
Still need head Mri scan on list to call hopefully before 6 weeks
Then see oncologist when I will finally know
options and results genetic gene test
Will keep in touch
Any idea how I get on to.private messages ?
Thanks
It's the box icon next to the bell icon at the top right corner of the page. xx
Hi Salpal, I hope you are feeling ok and sorry about your diagnosis. Could I ask you how you were diagnosed please? How long did you have to wait and how did it all happen?
Hi DRuss
My diagnoises started in November lat year Gp thought my spot on my cheek was a bite or boil given antibiotics and dermoscope 2 weeks later. GP appt advised nothing abnormal completely fine
Went back to Gp as It didn't go got a referral as a 4MM lesion suspected
Seen on nhs told probably bcc
had a Punch biopsy showed melenona .
Referred to cancer hospital
Had wide excersion with sential lymph node biopsy in March 6 weeks later got results 3a
So quiet a few appointments
I now have my oncology Consultation Thursday.
(It Should have been April but referred didn't go through )
Pet/ct scan was really quick so were results.
Awaiting Mri head scan .
Seems a long Journey but now feel I am at the better end hopefully I will have a plan soon, obviously depends on my mri scan .
Have to say the support from CNS and secretary Has been fab .
Especially Dermatology nurse
Long version I know .
I know other people who were seen and had plan with in a few months .
where are u upto?
Hi Salpal, thank you for describing your journey and I wish you best wishes.
i had an online private dermatologist look at some images of a mole on my cheek which I noticed looked a bit different after I’d shaved my beard. He suggested it could be a melanoma so I went to the GP who referred me on a 2 week urgent case. I attended a Teledermatology appt and that was within a week and yesterday I received a letter saying a Consultant wanted to review it face to face and I’d receive an pot within 2-3 months.
so I’m not yet aware of what if any issue I may have but was told at the TD appt that if it was nothing to worry about I’d receive a discharge letter. So I’m assuming it’s something but not yet of what it is.
Hi
Sounds good news.
I had teledermotolgy (Photo,) at the beginning
I was seen two days later in the dermatology clinic
The dermatology consultant did say alot of people get called in.
Sometimes they do watch and wait to see if any change .
Which part of the country are you treated?