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CMML & MF

SueinDevon
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Around 6 weeks ago my husband was sent for a bone marrow biopsy after he had been to our GP after what appeared to be nothing more than a pulled muscle. It turns out his spleen was enlarged and his blood count was low which prompted the bone marrow procedure. Four weeks ago we were told he has CMML and MF, and that he will need an intensive course of chemotherapy and a bone marrow transplant. Our world has just collapsed.  We go from crying, to disbelief to uncertainty and total fear of the unknown. The literature we were given just terrifies us. We have spoken to various organisations, but nobody seems to be able to explain this condition to us. Can anyone help, please. Thank you. Sue 

  • A very warm welcome to the forum Sue, although I'm sorry to hear your husband has been diagnosed with CMML and MF.

    Coping with a cancer diagnosis can be very tough, especially when you are contending with so many thoughts and emotions, but I'm glad you've reached out to us Sue as so many of our members will know what you're going through, so you are not alone on this journey as I'm sure some of them will stop by soon to offer their support and advice.

    You can find out more about Chronic myelomonocytic leukaemia and Myelofibrosis on our website, but as you've mentioned you're having difficulty finding someone to explain this to you, I would suggest giving our team of cancer nurses a call. They're very easy to talk to and will do all they can to break this down for you and make it easier to understand, so do get in touch with them when you can on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m.

    I hope this helps Sue and that you can take some strength, and comfort, from knowing that we are here for you and sending you both all our support at this very challenging time.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    That's wonderful Steph, thank you so much for being there, it's a great comfort. I will certainly ring the nurses as you suggest. We will get through this.

    Kindest regards. 

    Sue

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