I’m awaiting blood test results for Neurendocrine before stage and treatments can be discussed, I’m trying to stay positive and strong for my family but I’m struggling
Waiting for results can be one of the most difficult parts of this process, especially when so much depends on them. It’s completely natural to feel like you’re struggling, trying to stay strong for your family while facing so much uncertainty is a huge emotional load to carry.
You’re not alone in feeling this way, many people here will understand exactly what you’re going through and I hope some of them will be along soon to chat with you as talking to those who can relate does seem to help.
If you ever feel like it might help to talk things through with someone, our nurses are here for you, too. They can be reached on 0808 800 4040, Monday to Friday, 9 a.m. to 5 p.m.
I have recently been diagnosed with neuroendocrine cells in my stomach. The meeting with surgical team and waiting for a specialist team to assess the biopsys were horrendous. Everything is wait. wait. wait. I've was told I have bad anemia and needed 24,, hour urine tests. I've been told by phone, no treatment needed, just monitoring every 12, months by endoscopy. No one explains outcome of urine tests or what they are going to do about anemia just they will see me in clinic in 12, months. It's cancer, how are you supposed to cope with it. I know that I'm one of the lucky ones I don't need surgery now but how do you get your head around what the future hold.
I hope you get your results soon and for the best outcome possible. Fear of the unknown is so hard to cope with
