I got diagnosed on april20th and got discharged from hospital on 24thApril. I have Necrobiosis Lipodocia in my right lower leg, which I've been suffering with for 13 years. They finally did a biopsy after begging for investigation for years as lost faith in Dermotology in Vornwall.it took going in with Kidney issue to a&e, being admitted for treatment. They had put a vacuumed pump on my leg to help with healing, yet 3 days later, when on even more pain, discovered they had not put on the base dressing to wound and just out the foam straight on. It had then fused to my wound.A surgeon just came in and ripped it off. Crating explanenional damage. This triggered Dermo to finally do a biopsy. 1 week later I was sprung with the news, just left on my own and Discharged, saying they would arrange plastic Surgeon appointment. I had appointment 2 weeks later, in Plymouth, they then said it look deep, CT scan shows it had not mestastitised to main body. MRI taken a week later in cornwall at last. 1 week later after no news, I chased Skin Cancee nurses at hospital and they said has been some kind of mix up and they were unaware of me, then upon investigation another hospital have results and they are unaware of me too. I then got a call thr next day from Skin Cancee nurse saying MRI shows is deep than thought, has spread to muscle and bone and that Dr is on holiday.

I have been assured now, there be a plan now. But I just feel I was ignored for so long, left in absolute agony for years while my leg became cancerous. I am probably having amputation but I'm so scared as left with no info in pain and just want to be back in hospital for care before. I'm homebound and can't walk, a nurse comes everyday to bandage my leg. But how can I admitt myself back in? Any advice about this type of cancer and what stage I am, has anyone else experienced leg amputation and what to expect?

Thank you for reading, Em