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Treatment for Metastatic adenocarcinoma lung primary - has anyone had/heard of these?

Minnie63
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My husbands diagnosis.

Metastatic adenocarcinoma lung primary

T3 N2 M1c

Stage IVB

Referred to hospital

Only symptom now is lower back ache & stress

My husbands had his first meeting with oncologist & treatment will be chemothrerapy & immunotherapy every 3 weeks for 2 years & then alter/stop chemo & cont immunertherapy. He is also waiting on the CTDNA blood test to see if targeted therapies can be used.

She also mentioned Strike trial treatments & radiotherapy for the small brain/bone mets. He as a small met on brain & one or 2 mets on lower back. She also mentioned bone treatment.

She said the cancer isnt aggresive & is surprised how well my husband is, only a slight back ache, but nothing to warrant a T3N2M1c lung cancer diagnosis.

She sounded very optimistic & said he should be able to go on holiday in June.

The first doctor that has given hope.

Not sure if anyone as had or heard of any of these treatments & been at this stage?

Although I wrote everything down, I cant remember anything else she said.

  • Hey Minnie, 

    I'm glad your husband has now seen the oncologist and you have a treatment plan in place. A lot of our members know the relief that comes with finding out what happens next and hopefully those who have had either of these treatments will be along soon to share their experiences and advice.

    We have some general information about chemotherapy, immunotherapy and radiotherapy on our website but if you have any further questions about this or the strike trial treatments that has been suggested, then don't hesitate to in giving our cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

    We're continuing to send you all our support Minnie and are wishing your husband all the best with his treatment when it begins.

    Best wishes to you both,

    Steph, Cancer Chat Moderator

  • Offline in reply to Minnie63

    Has anyone had radiotherapy for one brain met from lung cancer? 

    Had a call today to say doctor is ringing Weds to arrange treatment for the brain. I only know its one brain met from an MRI on the 18th Feb & another MRI is being done Tuesday before Doc calls Weds.

    Are side affects bad & do they last for short/long term. I know everyone is different, but just wanted an idea.

    My husbands very down today, finding all the pre treatment tests & treatment itself scary. He wont even look at appointment letters, his eyes have a permanant terrified look & very tearful. I'm doing my best to keep him focused, but he doesnt want to discuss anything.

    I've got my diary for him set up now & 3 folders, diagnosis letters, appointment letters & a folder for actual appointment days with paperwork he'll need. I'm now organised. But sadly my husband is just so scared & he keeps weighing himself. Hes lost about 7lbs, but hes appetites gone through stress & worry. Mines the same, but I dont keep weighing myself.

    Every ache pain etc he thinks its cancer.

    I'm sure most newly diagnosed are like my husband, I just dont know what else to do for him.

    I seem to be coming to terms with this awful diagnosis, but still have bad days & cry quietly.

    Its just so horrible to see someone so scared & theres nothing I can do to help.....

    Sorry for long post, I'm crying I'm writing it x

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