Having mastectomy and can't decide what option to choose

I am new here. On tge last Thursday, 9th January 2025, I was diagnosed with high grade DCIS in left breast. Mastectomy is the only option presented to me. It is very overwhelming I am trying to be positive but this week on Friday, at work, I had a panic attack. I am not sleeping well. I wake up around 3am every day. I feel quite tearful but wanting to be strong and haven't cried yet. 

I am so confused about whether to have reconstruction or not? I am worried about the length of surgery time as it increases with different options of reconstruction. I am also worried about the chance of infections and healing time depending on the reconstruction option. Due to this fear I am leaning towards no reconstruction but I am not 100% sure I'd like the way it feels/looks. 

Any experiences/advice would be welcome. 

Thank you.

Parents
  • Hi, Sorry to hear you’re going through this. It’s a big decision and I’m guessing you don’t have much time to decide so it’s very stressful too. 

    I was diagnosed with DCIS on Christmas Eve but as they are still doing further tests, I don’t know my treatment plan yet other than it will be an op and I may need reconstruction. Because of the not knowing and waiting, I’ve been reading up on it all and have just found a table on the macmillan website about the types of reconstruction. It’s not letting me post a link.

    Hopefuliy, someone else will reply who has already been through this. 
    Take care of yourself

Reply
  • Hi, Sorry to hear you’re going through this. It’s a big decision and I’m guessing you don’t have much time to decide so it’s very stressful too. 

    I was diagnosed with DCIS on Christmas Eve but as they are still doing further tests, I don’t know my treatment plan yet other than it will be an op and I may need reconstruction. Because of the not knowing and waiting, I’ve been reading up on it all and have just found a table on the macmillan website about the types of reconstruction. It’s not letting me post a link.

    Hopefuliy, someone else will reply who has already been through this. 
    Take care of yourself

Children
  • Thank you N1ck. I literally just received an appointment letter via email, for Wednesday 22nd Jan, for a consultation with Plastic team. I hope that they are not requiring me to take decisions on what type reconstruction I would like. As I said earlier I don't even know if I want the reconstruction yet. I am very worried about the healing time and possible complications with each of the options. I know complications can happen with any surgery so it's not a very rational fear.

  • Good luck for your appointment. I read that the DIEP flat from the stomach is the gold standard. I’ve got a B cup and 3cm DCIS and another area being investigated so I’m hoping that can do a lumpectomy but if it’s reconstruction, I’d also consider an implant. Let us know what they say.