Coping with my diagnosis

I have been diagnosed with light chain myeloma last February 2024, for the last year I have tried to be strong with my diagnosis, but I then had peripheral oedema. The ulcers were painful but now are slowly healing, I am struggling & don’t feel I can cope anymore, my family are very supportive so I try for them, but I’m scared. 

  • Hello Lowmef08

    I'm sorry to hear about your diagnosis and how much you've been struggling recently. It sounds like it's been a difficult time for you but I'm glad to hear that the ulcers are slowly healing. 

    Many people find that they go through periods where they struggle after a cancer diagnosis. It's good to hear that your family are so supportive but I'd really encourage them to share with them how you're feeling. I'm sure they will want to do all they can to help reassure and improve things for you. 

    Do you have a specialist cancer nurse? It would also be a good idea to talk with them. They will know what counselling options may be available in your local area and hopefully be able to help you access some support to help improve how you're feeling about things. If there is a Maggie's in your local area you may also want to drop in for a chat with one of their cancer support workers. It may be helpful to have a look at some of the information on the Myeloma UK website as well. 

    If you'd like to talk with one of our nurses I know they will be happy to listen and offer any advice, information and reassurance they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I know this has been a difficult time for you Lowmef08. Do reach out to those around you for help and hopefully things will improve for you soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi Jen

     Thank you for your reply it’s much appreciated, know there are people worse than me, bit of course it still makes me worried. There is a place in Tonbridge called Babons cancer support I will give it a go, I think I’m just insecure and nervous about going into there but will pop in and try.

    Once again thank you for your support, you all do such a good job!

    Best wishes

    Elaine

  • Hi Elaine,

    A very warm welcome to our forum.

    I am glad to hear that your ulcers are finally healing, but understand exactly how you feel. It is only natural to feel scared on this journey and no matter how supportive family and friends are, they can be at a loss, as to how to support you, if they have no experience of your condition. 

    Babons Cancer Support sounds like the ideal place for you to contact. It is daunting having to make that initial contact, but it is well worth a try. You will find that they also offer other services for cancer patients, which you may find helpful. I have had 2 bouts of breast cancer and decided to attend Maggies. My husband attended with me, but had to go in by himself for the first 2 visits. I got as far as the front door each time, then couldn't go any further. A very pleasant lady volunteer even came downstairs, to try and persuade me to go in. She had experience of cancer herself and told me how helpful she had found the centre, but I couldn't be swayed. I cannot explain why I was so reluctant. I am a strong and self-sufficient person and perhaps I felt weak, having to rely on others to help me, as it is usually me doing the helping?

    Having spoken to this lady, I thought about what she had said, after I arrived home and made up my mind that I really needed to attend. It took me to my third visit, before I plucked up the courage to enter the building and boy, am I glad that I did! At first, I didn't think that the counselling was helping, but despite this, I persevered and it eventually made a huge difference. The centre was also a great source of other local cancer services, which I had never heard about and I have never looked back. That was all 14 years ago and I still lead a busy and fulfilling life.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx