Prostate cancer - my Dad

Hi Everyone,

First-time posting here—like many, I’ve tended to shy away from cancer until it was staring me in the face.

My dad has been diagnosed with Stage 4 metastatic prostate cancer, which has spread to a single site on his pelvic bone (1cm tumour). I understand this isn’t curable, but with the right treatment, many men live for years. His PSA is quite high (80+), suggesting potential for fast progression, but the limited spread (oligometastatic) gives us some hope.

He’s fit, active, and otherwise healthy—loves golf, walking, and staying on the move. He doesn’t smoke or drink, so I’d like to think his body can handle treatment well.

He started on hormone therapy (ADT) and has tolerated it fine so far, but following his PET scan, it’s clear this won’t be enough long-term. Now, he’s faced with treatment decisions, and I’d love to hear from anyone who’s navigated similar choices.

The three main options presented were:

1. Hormone therapy only

2. Chemotherapy + hormone therapy + androgen inhibitors(aggressive approach but with more side effects)

3. **(Waiting for confirmation of this one but think more tablet led and possible radiotherapy) 

many thanks  

  • Hi GJones1982. 

    While my PSA was pretty high and my Gleason was 9, I was lucky in that totally within the prostate. I therefore got away with the hormone drug injections and 20 radiotherapy sessions. That was back in 2021, ADT continued until last year.

    Yes, usual side effects  -  particularly ED but then I am old! But still alive and little impact on my quality of life. 

    The plus point for your dad is:

    "its very hard - I’m supporting my dad with information but the choice has to be his as the stakes are high and best he decides for him and we just love / support and respect his wishes."

    He is a very lucky man to be supported with such empathy, respect and plain love. 

    Good luck to him and you.

    Dave.

  • Hi Dave 

    thanks for this - if you see rest of the trail my dad dad has decided to go all in with treatments. While only a small 1cm tumour (suspected tumour) on his bone he is keen to try tackle that with doxetaxel and darylutomide as well as the ADT which he currently is having.

    its been his decision, a brave one and we will just continue to support him and hope the treatments work and the side effects are manageable 

    i am expecting ups and downs but as long as he is happy and is with us with a good quality of life (walks / football / social) we will be fine.

    i think at diagnosis i was so fearful of not having much time, but as I’ve read up, understood the science am confident he will be with us a while yet and that is comforting 

    thank you for sharing your diagnosis and glad you are keeping well 

  • Bone scan was all clear some good news for a change just started on tablets and then injection to slow cancer down then radiation then a pray and a lot of hope 

    wishing your dad well take care