DCIS and still processing

Hello I’m new to this just wanted someone to talk to feeling at rock bottom and still processing x

Parents
  • HI Alexandra-N,

    A very warm welcome to the forum.

    Have you had a diagnosis yet and if so, what is it? It is normal to feel emotionally drained at this stage in your journey. There are so many unknowns to start with and our over active imaginations don't help either.

    Please keep in touch and let us know how you are getting on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you so much after loosing my dad to breast cancer and have tested positive for BRACC2 gene I was called for my first mammogram early after my 40th.

    I had no symptoms no lumps or anything just thought I was reassured with having regular checks. Turns out they found something deep in my tissue on my mammogram. Was called back for further imaging. Before I had time to process anything straightway had another mammogram straight for ultrasound and then a biopsy. I’m a positive person so thought to myself maybe it’s a cyst or a benign something. No news is good news as I waited weeks nearly a month to hear something. I was called back to see consultant to find out it was cancer DCIS carcinoma FA can’t pronounce the word. 
    Good news was they found it early and it’s treatable. Surgery to remove it and possible radiotherapy. Even with the positive news I felt a rug had been pulled from underneath me. I’ve been to all my appointments had my magseed fitted and went back to work. Work kept me very busy so did Christmas. My family said are you ok you seem very blaise about it all told em I was fine. Well thought I was. But as I finished work and Xmas was over my surgery came then whilst waiting to go down had some kind of break down. My surgery went very well and I’m in my fourth day of recovery but my mental health has took a tumble. My family are so worried and feel I can’t talk to them out of fear of burdening them with more worry and stress. I feel very scared but a fool as people are in much more worse situation than me. I worry so much and now waiting on results whether or not I’m to have radiotherapy. Is having all these feelings normal? 

  • I think so - I'm a bit further along than you - surgery in October and currently having 18 rounds of Chemo before radiotherapy.

    I feel a complete divide between how I am with my husband and daughter and what's actually going on in my head....it's almost 3am and I'm writing this to you - should be a good indication .

    I think the only thing we can do is be our own best friend. Keep finding positive thoughts and repeat them till they are true. Tell yourself that you and your body are doing something amazing whilst going through something so traumatic - every day you are getting up and fighting this horrible disease and showing yourself that you have strength you never knew existed. Talk to yourself like you would talk to your best friend and when you see your treatment team don't be afraid to ask them anything - they actively encourage this and want to know what help you need. Talking to my specialist nurse and the Oncology nurses has really helped.

    My fingers are crossed that you'll find some calm....and we both get better sleep

Reply
  • I think so - I'm a bit further along than you - surgery in October and currently having 18 rounds of Chemo before radiotherapy.

    I feel a complete divide between how I am with my husband and daughter and what's actually going on in my head....it's almost 3am and I'm writing this to you - should be a good indication .

    I think the only thing we can do is be our own best friend. Keep finding positive thoughts and repeat them till they are true. Tell yourself that you and your body are doing something amazing whilst going through something so traumatic - every day you are getting up and fighting this horrible disease and showing yourself that you have strength you never knew existed. Talk to yourself like you would talk to your best friend and when you see your treatment team don't be afraid to ask them anything - they actively encourage this and want to know what help you need. Talking to my specialist nurse and the Oncology nurses has really helped.

    My fingers are crossed that you'll find some calm....and we both get better sleep

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