Hi Karen just thought I would let you know that I got the all clear and currently after a CT scan I am cancer free. Unfortunately eating is a chore now which I hate and I have lost over 4 1/2 stone. However I have stopped looking at all esophageal cancer groups on social media and decided to just eat smaller portions but food that I can stand rather than constantly looking for high protein and calories. Being ruled by food can quite frankly drive you bonkers. Also everyone says how amazing the all clear is however for most of us it’s just the start of a very long journey. I hope all is well with your son and you are finding your own way through this process. xx

That's just fantastic Marc! When you think back to last winter when you first posted on here and now being all clear. Did you vocal chords recover? I recall you saying your voice was a bit different after the op. Did you manage all 4 post op chemo sessions? Deans having his 2nd post op chemo soon. He's doing alright thanks, same as you regarding eating, its a chore for him.

He's got bad dumping syndrome at times and the surgical join has felt tight at times but ok again now - I think its due to the healing process. He's lost about 4 stone since diagnosis but luckily he was overweight and is still around 16 stone whish is ok. He gets low quite often (as I'm sure is the case for everyone in this situation) as he says he's had enough of living and breathing 'cancer' & talking about it all.

I think I do his head in trying to advise him about being active & what to try eating, and I buy him supplements etc!

So eating is not good? I know you know this but it supposedly gets better as your body adapts - hoping that will be the case for you.

I don't blame you coming off the groups on social media - you need your actual life back at some point don't you & it can take over. I look at them every day, just for hope & the positive stories of all the people who had the op 10, 15,  20 odd years ago really. 

Well, I think I spotted you on FB as may have been in the same FB group!

You take good care of yourself Marc.x

Hi my voice is still rather croaky and I’m due to have tephlon injected into my vocal cords. This should ease them and literally stop them from sticking. My tube is being widened next month so I can swallow a bit better and then they can leave me alone