Hi. The fear is understandable of course. Have you had any treatment yet? My son was diagnosed oesophageal cancer yesterday so we are all still in shock. Hes 42. None of us can think of anything else. I don't know how to just carry on and do normal things. Are you trying to go on as normal?

Hi Karren, Very sorry to hear about your Son. It’s all a bit much to deal with however even after just a month the fact that it’s real and the why me feeling gets more bearable. I know it’s difficult but please get him to try to NOT keep looking it up on the internet as this really is frightening and you nearly always get the worst case scenario on there. I had an endoscopic ultrasound this morning and it was fine. I had a laparoscopy 3 weeks ago and this was abit more uncomfortable and sore for a few days but another thing to tick off the list. Take each day at a time. I am a teacher with young adults with learning difficulties and autism so it was difficult to keep working as they are in your face a bit. It’s early days and I am doing as much as possible at the moment whilst I can before Chemotherapy. So yes as normal as possible. Take the scans and tests they will do one by one and make sure he talks to you and his loved ones about it. Please contact me anytime or get him to as it would be good to have someone else who understands the challenges. 
All the very best

Hi ya 

Hubby has oesophageal cancer. Had a stent fitted last year 

Re nutrition 

So tips add sour cream to things

Curry chilli anything you lije taste of and Blitz the bee geebers out of it in a blender to the consultancy you can easily swallow

Fizzy drinks help clear it down ( stent tip) so drink to help it teavel

Smaller amounts are better than none

Lots of gravy sauce to smooth thst mash down

And also things like quavers melt in the mouth 

Yogurt without lumps 

And hang in there. .....

Hi. Yes, my son blends up...wait for it potato & leek soup with a whole tube of primula cheese spread.  He adds spices to stuff & he has cheesy wotsits & quavers like you mentioned.

Does a stent allow solid food or not?

Hi Karen

A stent is a tube that holds the oesophagus open ( used when the tumour is closing it) 

Yes it is done to allow the patient to be able to swallow .....soft diet etc 

Hubby has had it eight months now 

 I thing the leak soup with primula chesse is a top tip 

Thanks for sharing

I hope you hear soon so you know exactly what is what

The waiting is the worst

I have sons too so Mum vibes to you 

Fingers crossed for good news 

Thanks. So has your hubby had any chemo yet? I know all the tests they do are crucial to getting the right treatment etc but every case of this I have read about have FLOT chemo then Ivor-Lewis op then more FLOT chemo so I don't know why they don't just get on with it. I think you can tell I am anxious for them to get treating it. Its 7 weeks today since diagnosis. They have told him hes having FLOT, Ivor Lewis op etc and that the oncologist will be in touch 'shortly' 

Hi it took exactly 12 weeks from diagnosis to my first treatment last Monday. It does seem an age. The time however is not a factor. The operation recovery can be slightly different according to the individual but only by a couple of weeks. Also th amount of Flot varies from person to person afterwards. Some people don’t have any afterwards. I hope you get answers soon. 

12 weeks! OK I see. My concern is it spreading while we wait. So far theyve not found any evidence of spread on CT scan or laparoscopy & I just want it to stay that way till he gets chemo.

Hi Karen

Yes hubby has had chemo ...two types together via a Picc line ( permanent IV )  then a break

He is palliative care as he has secondaries. So bit different to your son 

 Remember you can contact the medical team and ask questions

And we had support from Macmillan who sorted out our benefits PIP and carers allowance they were brilliant  

Sorry, didn't think your hubby in a different situation. I've told Dean to call them tomorrow! Some parts of the country people have chemo about 4 weeks after diagnosis. I'll tell my son about the PIP & Macmillan - thanks.

Got tumour at bottom of food pipe can’t eat any food just liguids, which are still hard to get down.I have had 2chemos with immune drug, next one dew next week.Going in for stent to be put in, as my swallowing as got worse.Not looking forward to it, but as to be done.

Got tumour at bottom of food pipe can’t eat any food just liguids, which are still hard to get down.I have had 2chemos with immune drug, next one dew next week.Going in for stent to be put in, as my swallowing as got worse.Not looking forward to it, but as to be done.

Hi Suki

Hope you stent went ago today

Hubby has one and done really well with it .

Soft   diet with gravy saucesand liquid diet but 

Fizzy pop is good for keeping strnt clear 

You should be given dietician appts and advice 

Good luck

Thankyou.

How are things going with you Suki?

Hows hubby & how are you?

Hello Karren

Thank you for asking

Hubby doing ok though this hot weather isnt helping him at all.

Due a scan this week then wait for results and go from there.....fingers crossed 

Glad he's ok. Blooming weather - never happy with it are we!

Good luck for scan.

Thanx and not a fan of extra hot and its sapping his energy I hope it rains!