Hi I am having the same procedure on Wednesday I have found it doesn't matter what anybody says the fear is constantly with you ,I am the same ,I don't switch off at night neither.I think my fear is to find out what stage i am at.Hope you find something to help you .

Its all constant fear. I know its not happening to me, but my son, but its constant fear as to what theyre going to say. My son will be told the stage soon as well but hasn't got appointment through yet. Keep googling what I know so far about his tumour size and no spread etc to try and predict - it's driving me mad!

Thanks Karren. My name is Marc by the way

Hi Marc. 
I know what you mean about all the DIY before the op. 
I was the same as there’s no way I could have sat looking at stuff once home. 
I was forever at the tip  

we also had to sort bank accounts out and get a Will sorted as there’s always that bit of your brain that says I may not wake up  

I have a koi pond and was seriously considering getting it shut down as my partner wouldn’t have a clue how to manage it. 

im now 4 weeks post op the scar on my abdomen has all but gone. There is a smaller one on my back which got an infection but that’s almost sorted now too. 
saw the dietitian yesterday and was told I could eat more things. 
nice one off to the chippy we went. Chips and a load of gravy. I only ate the soggy ones but must have eaten too quickly and got dumping syndrome. It wasn’t nice and took a few hours to subside but at least I knew what was happening. 
lesson learned 

gone back to yogurt and ice cream today, will reset and try again tomorrow 

Hi I have a note book that has all the little things in it that I can remember to tell my wife just in case such as passwords and where the radiator key is etc. Hope the eating gets better. Still you are at least attempting food that’s a bit more solid now. 

Hi how is it going. Have you managed any food that more solid yet. Do your insides feel different?

Hi Marc. 
yes , building back up slowly. Ate out at a cafe for lunch ( dinner where I’m from ) had an omelette although I could only eat half of it. Have to eat slower, you can’t just chuck things down and you can’t eat as much as we end up with only a tiny stomach. Had a spicy rice with some “sauce” on it for tea. . Am eating better so I’m slowly knocking down on the overnight feed thing you leave hospital with. 
I’ve been given my 2nd lot of chemo dates. Start again on 5/6 exactly 8 weeks after operation 

Good Luck on 2nd for your op , you’ll be in good hands 

keep us posted 

Kev

1. Sorry didn’t answer your second question. 
   insides feel the same, no different whatsoever. 
   stomach/belly below the incision feels weird to touch , it’s sort of numb like it’s got local anaesthetic in it still. It doesn’t hurt just feels weird. 
   im told it’s just muscles and stuff knitting back together 

Good luck for 2nd June. Soon be on the road to recovery.

Hi Kev - sorry, I know you're replying to Mark but just wanted to say it sounds like you're well on the way to healing now. Glad you're able to eat better even if it's slow progress.

Thank you Karren scared stiff but can’t be avoided now. Funny thing is that I did my bike test again yesterday and I did better than before the chemo which is bizarre. Hope your son is doing well. 

Wow, so you're fitness is good so that's a huge positive. Dean is on chemo no.3 on Thursday and is ok thanks. Hope I don't sound patronising as I only know the fear from a secondary angle but you are young & fit so you'll get through this fine.  

Wow, so you're fitness is good so that's a huge positive. Dean is on chemo no.3 on Thursday and is ok thanks. Hope I don't sound patronising as I only know the fear from a secondary angle but you are young & fit so you'll get through this fine.  

Well I’m still here. Went down to theatre at 8 am and  got back to Intensive care at  8:10 pm. Supposedly everything went as well as could be expected. Came round with hardly any pain but. A few tubes coming out of me and no feeding tube. The most annoying is the one in my nose. I have a bit of a sore chest but that is after three walks of about 10 minutes each and sitting up for most of the day. I am on 25 ml of water an hour so quite thirsty. Same tomorrow and then the possibility of tea or coffee ion Thursday. It’s very busy in ICU so not much sleep but I made it.

Hello Boxbrain0

Welcome back and well done for messaging so quick post op. 

So pleased for you that all has gone well.

Nasogastric  tubes are irritating try not to dislodge it! 

Hope your recovery goes smoothly and you get your cuppa tea soon

Sending best wishes

RB

Thank you. 

Wow Marc that’s fantastic news. Great to hear from you so quickly after your op. 
3 x10 min walks on day one is brilliant. 
you’ll be kicked out of ICU before you know it

It’s all the tubes and equipment that they have to follow you around with. I have a shortness of breath and chest pain but now I’ve got more pain relief I should be ok. How are you getting on

The tubes will soon start coming out you feel quite mobile when you get down to just the one drop stand. I still have shortness of breath now. I’m working on it as it’s holding me back from upping my exercise. 
went to a group meeting of upper GI people today 2 or 3 guys there who had operation like )6 and 9  years ago and doing well 

Didnt really want to go but was well worth it to chat with a couple of them. 
recommend it if they have something like that near you once you are up and out. 
Hickman line fitted and this time I remembered to take my steroid tablets as  Chemo starts again tomorrow 

Fantastic! Good to know you are doing well Mark. Look after yourself. Get as much rest as you can. 

Thank you. Really feel shattered now and the bed is uncomfortable when you can’t move about in it ń. Still I ate jelly an hour ago and it was great. 

Ahhh bless you! I bet you can't wait to get back to your own bed.

Suki good luck with the stent. Sorry I know nothing about them. 
Marc, that is one of the worst things straight after. You manage to get into bed , one stand on one side one on the other you’re not comfortable and you can’t move. They should stress this more in that pre hab. You need arm strength and leg strength to attempt to adjust yourself. Try and shove up on those things that stop you falling out of bed