Newly diagnosed with oesophageal cancer and the Fear

Hi I was diagnosed with oesophageal cancer last month and I have had a laparoscopy and having an endoscopic ultrasound tomorrow. I wondered if anyone has any ideas how I can help the absolute overwhelming fear that I am experiencing. I am having really bad dreams and hardly sleeping. The smallest mention of cancer on TV sends me into a panic and I am so worried about upsetting my wife and 20 year old son. It seems to never leave my thoughts. 

Parents
  • I am sorry to hear you are going through this.

    It is a big shock and that overwhelm is understandable 

    Well done for reaching out I am caring for my hubby and he often doesnt want to talk and I found that tricky ( we all process at different speeds ) but actually found when he did share his feelings it really helped us both....id say skip anyrhing on tv that is triggering 

    Hubby has been talking to counsellor which I see helps him lots 

    And hopefully you will get your results soon

    Top tip do all the things you enjoy 

    Dont put them off 

    Time is precious 

    Good luck 

  • Thank you. It does help to talk to people who know what its like as they are in the same or similar situation

    Glad your hubby can talk to someone. I think it must send you mad if you keep it all in.

    I have barely seen friends as I feel I don't want to talk about it to them as they dont get it. Just seeing people and hearing them talk about going for bottomless brunch, planning holiday or complaining about work or comparatively trivial stuff makes me feel like screaming at them at how bloody lucky they are thats all they have to worry about. I know really that I was exactly like that a few months ago - no serious worries at all.

    Hope you have ways of letting off steam yourself & good people around you as well as your hubby.

  • Its okay to feel what you feel

    And people dont get it unless they have been there.

    I have set boundaries and only engage on my terms it is exhausting repeating things and having to manage others reactions

    By time we have processed some of it we are already moving and adapting and then you meet someone who doesnt know ...they say the things they feel they should and ( gift you a meal for xmas!) cos they have no idea!

    (Yep it happened)

    Do things that give you space and feel better a walk a bubble bath or write on hear whatever it takes

    You dont have to know everything now or be petfect mum just take obe day at a time 

  • Exactly the feeling of it being exhausting repeating it all. When we first found out I didn't tell any of my friends or other family till I felt ready as you're still processing it yourself. I told 2 close friends and my sister after about 3 weeks then (horribly) just ignored others as I felt a barrier in that I couldn't physically write a Whatsapp message or call them to explain what was going on. 

    Previous to all this I used to go running round the forest near my home about 3 times a week but not since this, as its all I think about when I'm not at work. I know I must try and do normal things & I will once he gets started on treatment & I know its being dealt with.

    Thanks for the concern. Hope you are living life as much as you can too.

Reply
  • Exactly the feeling of it being exhausting repeating it all. When we first found out I didn't tell any of my friends or other family till I felt ready as you're still processing it yourself. I told 2 close friends and my sister after about 3 weeks then (horribly) just ignored others as I felt a barrier in that I couldn't physically write a Whatsapp message or call them to explain what was going on. 

    Previous to all this I used to go running round the forest near my home about 3 times a week but not since this, as its all I think about when I'm not at work. I know I must try and do normal things & I will once he gets started on treatment & I know its being dealt with.

    Thanks for the concern. Hope you are living life as much as you can too.

Children