Her2 pos

Hi, I am about to start chemotherapy and herseptin treatment on the 3rd of January, I have her 2 positive breast cancer with a 2ins tumour leading off the multiple others,stage,2/3, I am so scared about all this and what the side effects are going to be. I have spoken to my consultant and it sounds very bleak. I'm having 6 sessions and maybe surgery. My question is has anyone else been through the same as this and do you have any advice please to help.

Parents
  • Hi, I have also been diagnosed with stage 2 hers2 positive and am waiting for a date to start chemo , I am terrified and feel like the world has stopped .  I would really like to keep in touch with you and follow your journey . I have a lovely supportive family but do have alot of moments of feeling so alone and that it's only me going through this .  Best wishes  Dawn

Reply
  • Hi, I have also been diagnosed with stage 2 hers2 positive and am waiting for a date to start chemo , I am terrified and feel like the world has stopped .  I would really like to keep in touch with you and follow your journey . I have a lovely supportive family but do have alot of moments of feeling so alone and that it's only me going through this .  Best wishes  Dawn

Children
  • Hi Dawn, it's so nice to know I'm not on my own with this, I too feel like my world has come crashing down and I don't have any control over it.  The only control I have is my hair, I'm having it shaved on the 2nd ready for chemo. My family is also lovingly surportive but they don't see me when I quietly brake down and cry and feel so alone,,i would love to be on this journey with you. 

  • Hi , thank you for replying ,  I have been considering what to do about my hair this morning , I think you are doing the right thing . I don't know about you but the second I wake up I think about it all and that's when I have a meltdown. I do get better as the day goes on but the knot in my stomach remains . I have always been physically and mentally strong but now feel weak and tormented. All of my hospital appointments have been positive but it wears off after a day and the panic sets in . My consultant told me once you start treatment you mentally become stronger ,  I hope so because I want to feel better than this . Good luck on the 3rd , let me know how it goes , I am having a marker put on on that day then should get a start date for the chemo soon after that.  Thanks again for replying . Keep in touch.

  • My markers are in I have 3, you don't feel it going in as they use anathesetic , for a few seconds I'm fine in a morning but then I'm up and keep myself busy it's took a while to get like that but it works, for a few weeks I thought of nothing else but started my walking again and really does help,, deep breaths Dawn,, we will both get there and kick it in the ***, will stay in touch for sure, stay safe best wishes wendyj 

  • Yep deep breaths and lots of them . I am having my treatment at xxx hospital no complaints so far , they have me a box of goodies from a charity called little lifts . May I ask if your going for a wig ? 

  • High five xx on news years eve i took back control for just a moment and shaved my hair off...  i too have a diagnosis of hers positive .. treatment plan of 6 chemo ... surgery and maybe radiotherapy .... 

  • Hi, I'm so glad to hear you took control,, it's a hard decision to make but when it's done you have controlled the situation, I hope it didn't cause you to much stress and anxiety, it did with me for a while but enjoyed shopping for head wear after,, Iv lost my eye lashes over the past few days ,now that feels weird.

  • Oh was so emotional whilst my hair fell to the floor but i felt better once it was done .... and then it took a few days before i could look at myself.   I still have my eyebrows and lashes but lost hair every where else ;-/ 

  • I took my mirror out of my rm and wouldn't look in one for a few days,, I have got used to it now,, quite looking forward to seeing how it will grow back,,, my hairdresser suffers from alapesha and I never knew, her wigs are amazing, when she came to do my hair she took her wig off,, it was such a surreal moment and an amazing thing for her to do