Waiting on MDT meeting

I have recently been told I have a tumour in my rectum which is cancerous. 

I was referred by my GP 16 months ago and when I finally got an appt the "Consultant" asked me why I was there to see him and why I had been referred.  The fact I had been bleeding for over 2 years and was in pain didn't seem to register with him and he said he thought I was "just" suffering with colitis or ulcerated colitis.  I was so relieved!  He referred me for a sigmoidoscopy and the surgeon who did that advised me that it was a cancerous tumour. To say I was shocked is an understatement.  I've had scans and was sent for a colonoscopy yesterday which I was informed by the surgeon as I was about to go into theatre that I didn't really need one as they had a scan of my colon already.  I feel terrified but feel like I'm just being pushed around and nobody apart from the lovely surgeon who told me it was a cancerous ulcerated tumour who had been so kind.  I work for a GP and I know the NHS is running broken but I just wish someone would tell them how scary it feels when you get this news.

The meeting is on Thursday but I have no idea what to expect.

  • Hello Chellecoco3112

    I'm sorry to hear about all that you've been through over the past few months. Undoubtedly it's been a difficult time made even more so by the lack of clear communication and understanding during your appointments. 

    I hope that yesterday's MDT has brought some answers and reassurance for you. If you have any concerns or questions about the care that you've been receiving at the hospital then I'd suggest getting in touch with the hospital PALS team. It's part of their role to help resolve concerns or problems when you're using the NHS. 

    If there's anything you'd like to talk through with one of our team of nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I do hope that you have some answers and a clear treatment pathway recommendation soon along with the support and reassurance that you need. 

    Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator