Bladder Cancer

I’ve recently been diagnosed with Bladder cancer aged 50 which I’m still trying to deal with, had surgery to remove the tumour a few days ago, I’m still feeling uncomfortable. I’ve just received a call to go for an MRI on my liver which has made me freak out, I’ve refused saying there’s been a mistake. No one has even mentioned problems with my liver. I’ve had a CT scan which they said I would, still waiting on results on everything which should take 3/4 weeks. I’m very claustrophobic and only found this out from having an MRI 10 years ago, it took me many years to get over this and really don’t want to repeat it again. I’m worried they think it’s spread or is this just procedural? I haven’t told anyone of my diagnosis except my husband and boss just hoping that following the surgery all will be fine and they’ll be no further problems/appointments . I care for my parents and don’t want to worry them or my grown up children. I’ve always been the one to take care of everyone else. 

  • Hello SarahL7450

    I'm sorry to hear about your recent diagnosis and surgery for bladder cancer. It's understandably been a difficult time and natural that you don't want to worry those around you whilst you're still waiting for a clear picture of things.

    Do you have another appointment booked with the urology team? Hopefully, it won't be too long and they will be able to update you about things. In the meantime, don't be afraid to give your specialist cancer nurse a call to ask about why an MRI was requested. I'm sure that they will understand your reasons for declining the appointment and if there is anything that needs further investigation then they will be able to explain different ways of monitoring or investigating this. 

    If you'd like to talk things through with one of our team of nurses you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I hope that you have some answers soon SarahL7450 and that the team are able to offer you some reassurance about things. Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thanks Jenn for your reply I appreciate that. Yesterday I had a signed for delivery from the hospital which was urgent blood test forms, I’m guessing that’s instead of the MRI scan, I’m trying to stay positive and hope it’s just a procedure thing to check the liver, I hope an appointment comes through soon to tell me all the results. 
    Sarah