Eye melonoma

Hi all 

I was diagnosed with a tumor in left eye when I noticed a shadow appear I am going to Sheffield to have the markers put in my eye this week for proton beam therapy in January 

I have a video call with Liverpool end of December , what questions should I be asking them ? I know about possible loss of site 

sorry to seem a bit dim as this is all new to me and a bit scary

thank

paul

Parents
  • Hi Paul,

    How are you getting on and most importantly how are you feeling?

    My story is a bit like yours, I had to go to Hospital where I was told I had a tumour in my right eye. This was at the beginning of December. A week later I went in to have markers sewn around the tumour. I now have to wait until February for my mask to be made then proton beam radiotherapy. On the last day I am having a biopsy.

    When they told me, my reply was "well it is what it is" but tonight I have sat here sobbing. I feel exhausted and alone, even though I have family.

    I've still been going into work with the hope it would take my mind off things but not sure that's quite working.

Reply
  • Hi Paul,

    How are you getting on and most importantly how are you feeling?

    My story is a bit like yours, I had to go to Hospital where I was told I had a tumour in my right eye. This was at the beginning of December. A week later I went in to have markers sewn around the tumour. I now have to wait until February for my mask to be made then proton beam radiotherapy. On the last day I am having a biopsy.

    When they told me, my reply was "well it is what it is" but tonight I have sat here sobbing. I feel exhausted and alone, even though I have family.

    I've still been going into work with the hope it would take my mind off things but not sure that's quite working.

Children
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