Hi Rose, sorry to hear about your diagnosis of breast cancer. I was diagnosed with invasive ductal carcinoma in January and I had 7 cycles of chemo, from March to July and got through it with minimal side effects. I had a diep flap reconstruction 5 weeks ago and will be starting radiotherapy at the beginning of December. I am retired, so didn't have any work worries. I pretty much carried on as normal through treatment, although did need to take it easy for a couple of weeks after surgery. If you have any questions, feel free to ask. I wish you well with your journey moving forward. Xx

Hi, thank you for your response and sharing your own experience with me. Despite what you have been through reading your message feels positive in terms of treatment and makes me feel hopeful.  In terms of your reconstruction does it look realistic and are you satisfied with how it went?  Over how many surgeries did it take to reconstruct and did you opt for an inplant or your own skin reconstruction and if so which part of the body did you get the skin from? In terms of reducing scarring is there anything you would recommend?  Chemo wise does it make your body feel hot or cold, or do you not really notice any effect? I am prepared that I may lose hair and finger nails.

Hi Rose,

A very warm welcome to our forum.

I am sorry to hear about your diagnosis. I haven't had chemo, so can't help you with that, but I have had a double mastectomy.  I had a lumpectomy, a year prior to having this, but discovered a second cancer in the same breast, less than a year later. I actually found the double mastectomy easier to cope with, than the lumpectomy. Unfortunately, I was not a suitable candidate for reconstruction, due to previous, non-cancer related surgery.

There were two things that I found helpful post-surgery. One was a heart shaped cushion, which I placed under my arms initially. The other was to have day and night wear which opened at the front and didn't have to be lifted over the head. These were also helpful for post-surgical examinations. I have previously stopped breathing under general anaesthetic, due to having a narrow oesophagus and now need fibro-optic intubation, so this was a worry for me, but fortunately all went swimmingly.

It is good to hear that there has been no spread. Do you have a date for the start of chemo yet? Chemo is often the first mode of attack, as this often reduces the size of the tumour before surgery takes place. 

I sincerely hope that your treatment starts soon and that it does what it says on the tin. Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Rose,

A very warm welcome to our forum.

I am sorry to hear about your diagnosis. I haven't had chemo, so can't help you with that, but I have had a double mastectomy.  I had a lumpectomy, a year prior to having this, but discovered a second cancer in the same breast, less than a year later. I actually found the double mastectomy easier to cope with, than the lumpectomy. Unfortunately, I was not a suitable candidate for reconstruction, due to previous, non-cancer related surgery.

There were two things that I found helpful post-surgery. One was a heart shaped cushion, which I placed under my arms initially. The other was to have day and night wear which opened at the front and didn't have to be lifted over the head. These were also helpful for post-surgical examinations. I have previously stopped breathing under general anaesthetic, due to having a narrow oesophagus and now need fibro-optic intubation, so this was a worry for me, but fortunately all went swimmingly.

It is good to hear that there has been no spread. Do you have a date for the start of chemo yet? Chemo is often the first mode of attack, as this often reduces the size of the tumour before surgery takes place. 

I sincerely hope that your treatment starts soon and that it does what it says on the tin. Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine, 

Thank you for sharing your experience and the support, as well as the tips re a cushion and also the clothing.  I start chemo this Monday.(tomorrow) and have to have 6 rounds. 

Hi Samroz,

I am sure that you are feeling a little nervous about starting chemo on Monday, but hope that it goes well.

Don't forget that we are all here to support and advise you where we can. Please keep in touch and let us know how you get on.

Kind regards,

Jolamine xx

Hi all, in terms of an update I had chemo yesterday it took them a fourth time to get the canula in so I was bit of a human dart board for them but it was not an issue.  Another patient showed me their port but I think I will stick to canula for now, I look away when they try to insert it.  I was in ward with 5 other patients and we sat on some comfy seats, I was there for 7 hours but took a book and also chatted to some of the people. I was well looked after with offers of drinks and snacks.  I didn't have a reaction to the chemo so that is good but was reassured that if I had a reaction that anti-histamines and steroids are what are given to respond to reactions.  I was offered a cold cap for hair preservation but opted not to go for it, I was told it can cause migraines in some people and that it can hurt for a few minutes and it is only 50% chance it will work anyway.  I have been given anti-sickness pills and some steroids which I need to take, and some injections that need to be injected 3 times into my stomach each day.  So far after eating when I got back (admittedly I did have KFC) I had 2 stomach cramps and some diarrohea but all was ok. This morning some tingling in my feet and arm for a few minutes, and a bit of acid reflux but overall I feel good, no sickness, tiredness etc,  Next chemo round 2 out of 6 on the 16th December after bloods are taken to check it is ok to proceed.  

I know you guys have been through all this before but wanted to post an update with as much detail as I can so that any one who hasn't can be reassured that the chemo doesn't seem to be anything to be worried about, although I do appreciate that other people could have side effects and so could I going forward in terms of constant tingling in feet and hands, or effect on the heart/stomach etc as it's early days so far.

I am going to a music gig at a theatre on Saturday so know I have to be alert for temperature changes and go to A and E immediately if there are symptoms if an infection.   I will keep posting updates to this thread as and when just in case anyone else might find them useful or reassuring.

In terms of diagnosis I am also looking into whether I could have been diagnosed earlier because I was experiencing discomfort under the rib area and tingling in my underarm prior to the diagnosis which I don't think was investigated thoroughly, so my advice is to anyone if you know something is wrong and they can't figure it out press for an MRI or CT scan.

Hi Rose, so pleased to hear that your chemo went well yesterday. Be sure to let your team know if the tingling in your hand and feet continues, as they will want to monitor this. I opted for a port, but it wasn't fitted until after my first 2 chemo cycles. I'm really please I had it fitted, as even only having chemo via cannula twice, it did start causing discomfort in my arm, which lasted several weeks. I still get blood tests through my port, when needed. Also, I have zoledronic acid infusions every six months for 3 years, which is also done through the port. I also suffered with diarrhoea at times during chemo, which they gave me medication for. I hope you continue to do well, take care. Xx

Thanks Pippin, I'll see how I get on and keep the port option in mind. For some reason whenever I have bloods taken or needles inserted most medical professionals find it tricky, then occasionally there is someone that gets it first time.  Hope all is continuing to go well your side on your recovery journey, thank you for the support. Rose 

Hi Samros,

Thank you for the update, on how your chemo went. I am glad to hear that you are coping well with your first chemo and hope that this continues to be the case. Enjoy your music gig on Saturday.

Kind regards,

Jolamine xx