Hi Deb,

Ive seen your post has gone unanswered.    My daughter had been diagnosed with this awful disease but has since passed.   If there is anything I can answer please let me know.

Hi 

My goodness I’m so very, very sorry to hear this. 

Our son is currently having 7 weeks of proton radiotherapy. He’s also had 4 weeks with breaks in between of 24 chemo.

The cancer has responded very well so far although it’s been brutal on him. 

Can I ask how long your daughter had it? And her treatment? 

We have no idea what the future holds for our son but know he will struggle in many ways 

All the best

Deb