Kidney cancer

My husband has been diagnosed with kidney cancer, this was five weeks ago, diagnosed by a ct scan, he has had one inconclusive biopsy and we are now waiting results of the second biopsy, it’s going on for 6 weeks now, my husband is really unwell with sickness and pain , I can’t stand this waiting and nobody is telling us if this pain is normal.

does any know if it is ?

  • Hello Carysh

    I'm sorry to hear that your husband has recently been diagnosed with kidney cancer and that currently, he's now waiting for the results of a further biopsy. It's understandable that this is a difficult time for you both. 

    Were you given contact details for a specialist cancer nurse after his diagnosis? Please do call them to let them know about the pain and sickness that he's struggling with. Alternatively, you can call his GP for advice and support. There are options for being able to manage these symptoms and if further tests are needed to investigate them then they can be arranged. 

    If you'd like to talk with one of our nurses for some support and advice you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    I hope that these symptoms are better managed in the near future Carysh and that you both have some answers soon. 

    Do keep in touch and let us know how things are. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hello Carysh, I am newly diagnosed with kidney cancer and I’ve been told I need to have my right kidney removed asap I’m sorry your husband is in so much pain  and you haven’t been given the help or clarification . Go to your  GP to at least give him something for the pain xx

     I have suffered a huge weight loss and I am starting to notice the pain but nothing as severe as your husband’s. Have you been told anything? I was told that I have a 5cm mass on my kidney over the phone but things are moving very fast in my case and I believe it’s a postcode lottery

    I am praying for a good outcome for both of us ️

  • I’m sorry to hear that you have a kidney cancer, we were also told over the phone, we were on our way to my sons wedding, I’ll never known how we got through that day, obviously we couldn’t say anything.
    I don’t know how large the tumour is but it has already sprung to lymph nodes so having the kidney removed wasn’t an option for us.
    Unfortunately my husband had to be admitted on New Year’s Eve as he was so unwell, his kidney function is too poor for any chemotherapy at the moment so the hospital are trying to improve that before starting treatment, I just hope that they can.
    It’s such a stressful and worrying time.
    Wishing you well and a speedy recovery after surgery 
  • I’m so sorry to read this but hope they are doing everything they can for him xx I ended up having open surgery for a bowel obstruction so I have to recover from that before I can have the kidney removed I have lost a lot of weight due to the bowel problem so I need to gain weight if I can and get stronger 

    seeing surgeon on 27/2 to be given surgery date   let me know how your husband is keeping you both in my prayers 

  • So I had my surgery on the 26/3/25 my bowel has continued to cause me pain and I have a chronic partial obstruction and I’ve been in hospital now for 6 days 

    I had a phone call from my urologist telling me that the lump on my kidney was cancer but a very aggressive type and I have to have a CT of my lungs and immunotherapy 

    I was originally told that it was a stage 1 and now he’s saying high grade stage 3 or 4 depending upon the outcome of my CT I am in shock and devastated 

  • it’s very scary when you’re told that you have an aggressive cancer, my husband got told this about the cancer on his kidney, he also got told that his kidney function wasn’t good enough for treatment, but 2 nephrostomy’s and a catheter later they did manage to improve kidney function enough for chemotherapy, he had 4 cycles and has just started immunotherapy.

    so far he’s doing well and feeling much better it’s been 9 months since diagnosis so it’s a slow process.

    you can only do one day at a time and immunotherapy has improved a lot in the last few years, so keep fighting and I hope things will improve for you.

  • Thank you for your reply I’m hoping for the best and preparing for the worst but it’s the waiting that’s hard I was just sure everything was fine then got blown away but I’m not going to google anything I don’t want to get myself in a panic just wait for the results and my appointment with oncology xx

    i truly appreciate your support xx

  • I think that you are very sensible not to Google stuff, I did and it was a mistake, a lot of stuff online is not up to date, and I was much better just listening to the oncologist.

    But I know what you mean, waiting is so hard it’s just like living that nightmare, hang on in there and it’ll get better xx