Recently diagnosed with breast cancer

I recently had a call back from my recent mammogram, which unfortunately following biopsy has been diagnosed as breast cancer caused through hormone estrogen!  Now awaiting treatment planning meeting following an MRI scan which I had at the weekend.

is there anyone out there who has also been diagnosed recently, just for a shout out and possibly work together through this x

Parents
  • Hi, the same thing happened to me. It’s a really scary time but I had surgery 4 weeks ago to get rid of the cancer and I’m waiting for an appointment to start radiotherapy which will be 12 weeks from surgery.

  • Can I ask stupid question. What sort of clothes did you wear for the first few weeks? Could you lift your arm to put T-shirts on or is there something easier to wear. Can you still function with daily tasks-bathroom eyc

  • Oh I hope so    Thank you x

  • Hi Mummymartin, I think you might have had your surgery by now? If so, I hope your recovery is going well.

    I had a mastectomy and lymph node removal without reconstruction. I wore a button up top (pyjama top) on day of surgery but have been in normal clothes since then. For the first 2 or 3 days I put on my usual scoop neck and v neck tops, sometimes pulling them up over my hips. I’ve also been wearing long sleeved tshirts. I stuck with cardigans rather than jumpers for a few days but am now back in jumpers and sweatshirts. Yesterday (week and one day post op) I went without my softie from the hospital for the first time. Went out for a walk in a crop top style sports bra and it went really well - quite compressing but with even distribution of pressure. It was a bit tricky to get off. I wore post surgery bras for 3-4 days after the op until the bruising they were giving me over swelling got too painful. I then swapped to the smooth Sloggis I normally wear - put the softie into the pocket they have for removable padding.

  • Thank you for replying. My op was on Tuesday and I can home Tuesday night. Spent all night and yesterday being sick but I am upright at today and have eaten and had tea. Very tired. I am looking forward to getting the orange surgical wipe off my body and the purple arrow dictating which side to operate. 

  • Jolamine are you on fosamax I am supposed to take itvwas I now have osteoporosis but am very reluctant to take it

  • Offline in reply to Judyknitabob Unpublished Reply

    Sorry jolamine

  • I think I saw someone suggesting using hand sanitizer to remove the pen marks, that worked for me. Sorry to hear you were sick. I discussed that with the anaesthetist as I had been sick after general anaesthetic previously. She gave me something to reduce the risk - I think she said from about 30% to 3%. I still vomited once at home on the first evening but thankfully felt immediately well again afterwards.

  • Offline in reply to BF1

    Glad you have had your op! Sorry you have been unwell with sickness! I’m have my op on 12th, but I have now tested positive for mrsa as my op pres *** and waiting AB’s.   Has anyone else had this issue x

  • Hi Mummymartin,

    I am glad that your operation is now behind you, but sorry to hear  that you have been so sick following the anaesthetic. I used surgical spirit to remove the arrow marks.

    I hope that you have a speedy recovery.

    Please keep in touch and let us know how you get on. Remember that we are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Judyknitabob,

    Fortunately, when my bones were tested, I was told that I didn't need to take Fosamax. Why are you reluctant to take it?

    Kind regards,

    Jolamine xx

  • Hi BF1,

    It sounds as if you are recovering well after your surgery, which is good. I had a double mastectomy 14 years ago and remain flat. I have different prostheses for different activities and they work well.


    I am glad to hear that you are coping well with your Sloggis now. When are you hoping to get your post-op results?

    Please keep in touch and let us know how you get on. Remember that we are always here for you.

    Kind regards,

    Jolamine xx

Reply
  • Hi BF1,

    It sounds as if you are recovering well after your surgery, which is good. I had a double mastectomy 14 years ago and remain flat. I have different prostheses for different activities and they work well.


    I am glad to hear that you are coping well with your Sloggis now. When are you hoping to get your post-op results?

    Please keep in touch and let us know how you get on. Remember that we are always here for you.

    Kind regards,

    Jolamine xx

Children
  • Results from surgery were good, clear margins and size & grade of tumours hasn’t changed. Micrometastases in lymph nodes but that seems to be considered almost the same as clear lymph nodes. Awaiting oncotype results & discussion with oncologist on next steps.

  • Hi BF1,

    I am delighted to hear that your margins were clear and that there were no other changes. Oncotype results always take a little longer to come back - let's hope that these are good too! It gets easier once you know what treatment lies ahead, so I hope that your chat with the Oncologist goes well.

    Please keep us updated.

    Kind regards,

    Jolamine xx