Hello All,

I have been diagnosed with Adenocarcinoma the Dr has said it’s likely stage 1A2-stage 1B1 following MR scan and recommended hysterectomy as no plans for further children.

Background

I am 38 years old with 1 child and I have had clear smears until HPV detected 2022 and HPV with abnormal cells 2023. These were confirmed as glandular changes.

LLETZ procedure completed in nov 2023 which confirmed CIN3 which confused me as no glandular changes noted in biopsy histology (was advised this was rechecked and confirmed no glandular changes). My follow up smear July 2024 confirmed further glandular changes and further LLETZ needed. This confirmed cancerous cells and referred for MR scan last week.

MDT meeting advised hysterectomy although possible removal may have already occurred but due to infection and inflammation they couldn’t confirm for sure on MR scan and due to no preference for more children hysterectomy recommended.

Please can anyone advise if they have had a similar situation. I’m really worried things may have been missed and keep googling reoccurrence at stage 1b1 adenocarcinoma after hysterectomy and it’s frightening me.

Thank you xx