Hi ste62 just reading your posts I had PET scans when they were looking at liver so you may still have these to come, was also told the liver was my priority even though they had graded the bowel cancer (they told me mine was a grade 1 I think it was following the colonoscopy) I originally presumed it must be grade 4 to have spread but I think it’s more on the type of tumour rather than the grade as I had multiple mets in the liver from the primary in my bowel but these were all grade 1 when they took out and tested. 
we are all different though and our treatments do appear to be different it’s good they are shrinking primary first mine was small which I think is why I did not have chemo as it was easy to remove without. 
it’s not helpful but sadly a lot of waiting is involved but I wish you speedy treatment and a positive outcome xx 

wendy

Hello, Anne-Marie lives quite close to me and we’ve been chatting a lot about our experiences. 

I have never been told a stage either. I have a friend going through a similar journey to us who has same oncologist to me and he was told not to think about stages, it is really just for them to use in terms of what they are dealing with treatment plan wise, so I’ve never asked the question, I just know it would be classed as 4 because I’ve confirmed mets. 

I think with me they did the pet because there were areas of concern across both lobes and they wanted to be sure it hadn’t gone elsewhere. The areas of concern had been flagged on the first CT scan I had of the abdomen and pelvis.

The plan always was to do chemo first even after  they had confirmed the bowel and liver were operable. true oncologist said that although the pet confirmed no further spread it couldn’t pick up single cancer cells so best to blast with chemo first. She also didn’t want a delay so didn’t recommend I have the small tumour in the bowel operated on first incase there were any complications that would then delay the chemo starting. So much the same info as you.  

Thanks Wendy that’s really useful information x

Hello all

I hope you are all doing OK. I have my 2nd scan tomorrow (MRI, I think), and apparently my biopsies and ct scan results are back, but I don't know any details yet. I hope/think this means the MDT will dicuss my case next Friday. 

I think that means they'll have a plan/options/more detailed diagnosis soon?

Much as I feel 'ok' overall, and I certainly hate the waiting, I'm terrified to hear what exactly they've found, whether it's spread, and how hard the treatment will be.

So long as they can treat and cure (which was the initial comments of the surgeon who did the colonoscopy, and what I'm clinging to), I guess I have to accept anything else.

How is everyone else getting on with news and treatment?

Hi wishing you the best news looks like they are doing quickly so that’s a bonus x 

I started driving this week 8 weeks after surgery still in some pain but things are getting better, 

take care 

Wendy 

Thank you, Ste62 

How has your appointment gone today?

I'm told the MDT should be discussing me today as they have my biopsies and 2 scan results.

The cancer nurse offered to call me later today with an update post- meeting.

I know lots of people say this waiting is the hardest part and it gets easier, mentally, once you have a plan. But I'm terrified what they'll tell me. Wish me luck.