Ive just been diagnosed with a high grade diffuse glioma which is inoperable. Any thoughts ….waiting to hear about treatment plan, possible radiotherapy and chemo. Still in shock, and mind very busy with questions. Anyone had a similar experience.
I'm sorry to hear that you've recently been diagnosed with an inoperable glioma. It's understandable that you may be feeling overwhelmed by this news and the thoughts, feelings and questions that have cropped up since.
We know that for many people this period of waiting for more news regarding potential treatment and management plans can be difficult. We have some information on our website about glioma which you may find helpful but I'd also suggest getting in touch with one of our nurses to talk through your diagnosis. I know they will be happy to listen and offer any advice, information and support they can. If you'd like to talk with them they're available Monday to Friday 9am to 5pm on 0808 800 4040.
You might also want to consider having a look at the website and getting in touch with The Brain Tumour Charity. As a specialist brain tumour organisation they may be able to help you connect with others who are living with the same diagnosis.
I hope that you're able to get the information and support you need Remyfizz. Do let us know when you have some news from the specialists.
