My husband was diagnosed with multiple myeloma November 2021.
We have both been hoping he would be one of the lucky ones that lives 20+ years so it was easy to push it to the back of our mind.
Through blood tests for myeloma it was found that he was rapidly loosing platelets. He has had two transfusions whilst waiting for bone marrow biopsy results.
He seems to drop to below ten every two weeks.
We are still in shock even though I think we were both fearing the worse. I just don't want to face up to the truth that he will probably die within 2 years. Some people live for 5 or more with MDS.
Because he has had a bone marrow transplant/ stem cell replacement and chemotherapy along with the sudden onset of the huge drop in platelets it is not looking good.
Has anyone here been in this position or currently in this position?
My husband is not good at sharing his worries and I need someone to talk to. He is very tired and snappy which is not surprising.
He is only 64 (65 in September) and has started saying that he better get to 66 so he can get his pension before he dies..
I want to be positive but I also want us to be able to be honest about what is happening
My mum died at 51 from leukemia and I never discussed it with her because I didn't want to talk about it in case she gave up fighting or she got upset by me crying in front of her.
I want to be more open with my husband but I think denial is easier for him.
