Hi! I’m 50 and despite being fit and healthy have recently been diagnosed with a sacral chordoma.
My spinal consultant surgeon has recommended 1. Surgery which has a good success rate with low recurrence but lengthy recovery or 2. Proton beam therapy which could be less effective, possibly more likely to recur but much quicker recovery.
I am looking for your own personal experience of either type of treatment and am particularly interested in its success, recovery time, recurrence and any life changes, in order to make a more educated decision.
Many thanks