Hi
Just been diagnosed with aggressive Angiomyxoma over a month ago, journey so far is I went to the doctors just after Lockdown and took a while to get a referral, eventually after seeing many surgeons as they were unsure who would deal with it. I eventually had minor surgery and was told it was a fatty tissue. Then June 2024 they’ve removed as much as possible then diagnosed me with aggressive Angiomyxoma, I’ve had a CT scan and told it hasn’t spread, but went to see a surgeon yesterday who is suggesting a stoma bag, full hysterectomy will try and save my bladder plus will be performing a procedure to remove my vagina, I don’t even know what this is called. As you can imagine I’m in utter shock, they haven’t even discussed hormone treatment etc please any advice would be grateful
