When told of the diagnosis, the message I took away from that meeting with doctor and cancer support nurse was the sooner we get everything done the sooner we start treatment.Your appointment at hospital with consultant is already been sent for to get it done aspe Before you leave book your blood appointment for day after tomorrow when you bring your urine collection in. The meeting to do the genes test Braca 1/2, the sooner it's done the better. As soon as I signed consent for chemo, I'll get this sent off now electronically, you should quickly get phone appointment or actual appointment to see pre op nurse, then short while  after start the chemo.

I took that to mean a week at most, especially "if we're notified at beginning of week you'll start by end of week." Now I've rung up today after the electronic form being sent Friday afternoon to be told I've taken it too literally that the form probably won't get through for 10-14 days. Since I was told 11June they were pretty sure I'd got cancer and needed biopsy and bowel camera plus a second cat scan doing. It seems to be a long time of waiting when it's been emphasized how quick they're hoping to move. Also pain in right side is getting worse despite staying on the painkillers as advised.

I feel very much in limbo, foolish for being so literal about speed and anxious about the wait for starting to treat this. I don't like being a pest, but I don't want to be the idiot that's quietly waiting and being patient only to be forgotten, which has happened on other issues time and again. It's my life were mucking up here. As a carer for a father with dementia, I know how often you can be "fobbed"" off because it's not in someijob remit, or you've misunderstood, or you should have spoke up sooner. 

It's frightening being at the mercy of the ebb and flow of others.