Newly diagnosed

Hi everyone, 

I just wanted to pop on here for a bit of a chat as I'm finding everything a little overwhelming at the moment. 

I found a "thickening" in my breast around 10 weeks ago and after a few weeks (as I thought it was nothing), I went to the GP who didnt seem too concerned, but referred me to a breast clinic. I had to cancel my first appointment as I was on honeymoon that week, but had my second appointment a few days ago. I had a mammogram and then an ultrasound with the consultant. She said it was suspicious and took a biopsy from 2 areas of my breast and one in my lymph nodes. I'm now awaiting the results, but having a CT scan today. She seemed pretty convinced that its cancer so I dont think it can be benign. 

I am finding this all a little scary. I'm only 46 and got married in April. This isnt what I thought married life would start like. Because there was a lymph node biopsy, I'm now totally overthinking and convinced its spread and they wont be able to do anything about it. I know I shouldnt be thinking like that, but every little niggle or pain is making me wonder now, even though I am completely fit and healthy. I don't feel like there is anything wrong with me at all, so it all seems very unfair. I hate telling people, especially my two children, as although they are 22 and 25, its still hard for them and I wish I didnt have to put anyone through this. The best I can hope for is that its localised in the left breast (my right was clear) and hasnt spread through my lymph nodes to anywhere else. 

Has anyone else been through anything similar? I would appreicate your stories xx 

  • Hi Cheryl2109

    I was diagnosed with triple negative breast cancer last year after having ultrasounds and biopsies.  They take biopsies of the lymph node as a precaution.  They took two of my sentinel nodes for biopsy when I had breast conserving surgery in April and both came back clear.  It doesn't stop you worrying though and it's totally natural to do so.  Once you get your diagnosis (assuming it is cancer of course), you will see a consultant who will talk through the options with you and you will be assigned to a breast care nurse (who you can call on any time for advice or reassurance).  You will also get an oncology consultant and they and their team will talk you through the process once the decision (with your input) has been made as to the treatment path.  I have found my cancer team excellent and I've never felt left out in the cold.  They will likely drip feed you information so as not to overwhelm you at the beginning, and things can change as you progress through your treatment, depending on how you cope with whatever the treatment plan is.  I was originally scheduled to have surgery first, then chemo, but because it was triple negative, they wanted to do a test for the bracha gene first, which takes a few weeks to get the results, so I had chemo before surgery.  This turned out to be the best way for me as the chemo completed eradicated the cancer (also left breast), so the surgery was minimal and no reconstruction was required. 

    I am now continuing immunotherapy (which was also given at the same time as chemo) and will be starting radiotherapy on the 29th.  I won't deny the chemo was brutal for me, but many people sail through it without much impact apart from a bit of nausea and tiredness.  Again if it becomes unmanageable, your oncology team will be able to make adjustments to your dosage or change the type of chemo completely, so there are always options.  And of course this is all assuming it is cancer!

    I can tell you though that it's not the end of the world.  You will get through this and you will find all the support you need in the most unlikely places.  I've found this forum one of the most supportive, although I was rather jealous when going through chemo when many of the ladies were talking about how they were still doing long walks and going about their daily business while I was curled up on the sofa feeling like death at times lol.  But those yukky feelings do pass and you will have many good days in between treatments.  You will not be kept in the dark by your team of professionals and they are with you every step of the way. 

    If you do need to go down the chemo route, you will likely be given a tour of where the treatment is given so it's not overwhelming on your first day.  I've found treatment days pretty uplifting as all the staff are very upbeat and most other patients are very positive.  You can have a chat, read a book, snack or snooze or whatever you choose to do and what you feel most comfortable with.  

    I know it's easy to say, but please try not to worry.  Whatever the diagnosis, you will be supported and there's lots of treatment out there. 

    Let me know how you get on?  I hope your CT scan went ok today.

    Carol xx

  • Hi Carol, 

    Thank you so much for sharing your experience with me. My consultant was pretty convinced it was cancer from the scans, so I've resigned myself to that. It only scared me with the lymph node as it looked large on the screen, but its really hard to tell with scans isnt it. The treatment doesnt phase me. I know it wont be easy, but I'll do anything to get rid of it, no matter how hard. The only thing that scares me is that its possibly spread and they cant do anything about it, but I keep telling myself that I feel fit and healthy with no complaints, so it cant be that bad, right! 

    My scan was unfortunately cancelled today due to the Microsoft outage, so will be re-arranged for early next week. 

    Thanks again for your reply. 

    Cheryl xx