CIN3+ margin involvement

Hi,

In 1988 at age 30, I had a colposcopy in response to dysplasia of the cervix.  I was clear in the years afterward.  Fast forward to 2024.

I’m 67, and in April 2024 had a LLETZ in response to a finding of high risk HPV for second year running.  CIN3+ including margins.  

I waited six weeks for LLETZ results then finally called Dr Gynae who acted surprised I hadn’t had the report from my GP (she actually refused to read it to me over the phone and referred me back to the Gynae).  That of course didn’t help the nerves.

To cut a long story short, Dr Gynae is insisting I wait 6 months for a ‘test of cure’ before he takes further action.

 My question is, at my age, with a strong close family history of gynae CA (mother, aunt, sister) why wouldn’t they just do a hysterectomy?

The push back I’ve had feels like ageism.  Gynae said:

1.  At your age, something else will kill you before this does - he insisted cervical CA caused by HPV is slow growing.  By the way, I have no other health issues.  I think the real issue is the cost to the healthcare system.

2.  He says Family history of CA means nothing.  Refused genetic testing.

3.  He says…If you have a hysterectomy, you will feel less feminine and have to go through menopause.  I had menopause at age 52, and have no issues about feeling feminine!  This Gynae is a complete dinosaur.  He just keeps saying, everything will be fine.

I called the Histologist who did the testing (previously acquainted from work) and she said “B*** hell, woman, just get the Hysto done privately, asap”.  

Any thoughts?  This is keeping me awake at night.

  • Welcome to the forum XCV although I'm sorry for the reason you are joining us. It sounds very frustrating.

    If you haven't done so already, you could try getting a second opinion from a different gynaecologist but in the meantime, you're welcome to discuss this further with one of our nurses. They are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and will do all that they can to help.

    Hopefully some of our members who have been in a similar position will stop by to offer their support and advice, but in the meantime, we're thinking of you XCV and will have our fingers crossed you're able to get some much needed answers and peace of mind over this soon.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Thanks for the kind reply Steph.

    My mother died of ovarian CA at the same age I am now.  

    Her demise was hastened by diagnostic delays (typical 80’s errors like writing off vaginal bleeding as ‘late menopause’ at age 65!).  They didnt have the imaging we do now so she ended up only being diagnosed after developing a 17x 9 cm tumour.  I still have the horrific histology report from 35 years ago!

  • Offline in reply to XCV

    Steph,

    i took your advice and got a second opinion from a gynaecologist who readily agreed to do a complete hysterectomy so I finally have a path forward.  I know there is still a chance I will eventually develop vaginal CA but at least my immediate worries are settled.  Thank you for your help. 

  • That's great news XCV, I'm so pleased for you.

    I hope all goes well with your hysterectomy when the time comes but if you have other questions or concerns before then, don't hesitate in giving our cancer nurses a call on the number I gave you in my previous post.

    Kind regards,

    Steph, Cancer Chat Moderator