Hi Smudge24

So sorry to hear your news, it’s such a stressful time for you.  Like Pippin, I am also er/pr positive and HER2 positive but I had the surgery first and about to start chemo next week, I was diagnosed in February.  I know it’s a very confusing time but hopefully they will soon have your treatment plan sorted out and you can move forward.  Keeping busy and lots of walks helped me feel less anxious and calmed me down somewhat. Happy to help if you have any questions or just want to chat, best wishes x

Thank you Norasand and Pippin24. I’ve had a meeting today with doctor and still need one more ultrasound on one area to see if it’s another small tumor. That’s the determining factor for whether chemo or surgery comes first. The surgery part doesn’t bother me hugely. I think it looks like i’ll be going down the lumpectomy and radiation route. Chemo is the part I feel most nervous about. I’d love to hear how you’ve found chemo Pippin24. If you tried the cold cap, what’s happened to your hair etc. Good luck in starting yours next week Norasand, how do you feel about it? Let us know how it goes. How long is yours? 

Hi, I had two tumours, plus cells in breast tissue and one lymph node, so they decided to try and shrink them with chemo first. I was put on EC-T chemo, 3 EC, followed by T (for me this is docetaxel). Had no problems with EC, with only minimal side effects. Tumours had already reduced after these three cycles. Then started docetaxel, which I had been really worried about, as it's stronger and some of the side effects mentioned scared me. However, I've been fine  on this too, still with minimal side effects. I had been concerned about nail damage on the docetaxel, but started using a product called polybalm at the start of my chemo and have had no issues. I'm also now on phesgo injections for a year, due to being HER2 positive. I decided against using the cold cap, as I'm already prone to headaches. I got a lovely wig, which I wear if going out for a meal, or with friends. I also bought some really nice hats from a company called anna bandana, which I wear most of the time. Like Norasand, I go out for a walk every day, as it helps with my mindset and keeps me positive. Keep in touch and let me know how you get on. 

Norasand, it's great that you've already had your surgery. Hope all goes well with your chemo. Xx

Hi , I have 12 cycles of Paclitaxel & trastuzumab, trastuzumab for a year then neratinib, also having radiation but unsure when this will be. Feeling very nervous the closer it gets, I am immunocompromised as I have no spleen, just hoping I can get through treatment without too many problems, really reassuring to hear from Pippin24 experience , I am going to try cold cap and see how it goes, will keep you updated.  Good luck for your ultrasound and future treatments keep in touch and let us know how you get on xx

Pippin24 thank you, so pleased it’s going well for you, really interested in polybalm have I left it too late to start? Best of luck for rest of treatments, let us know how things go for you xx

Hi Norasand, I started using the polybalm a couple of days before I started chemo. This is the advice they give you, but if you haven't, they say to start as soon as you can. If you buy directly from polybslm, they deliver quite quickly. You can get more information about this product on YouTube, which is worth a watch. You can also send them messages with any questions, they get back to you very quickly. Good luck for next week. Xx

I am currently undergoing Ec-T chemo, have had 2 cycles so far with 2 more to go. Was really anxious about chemo and side effects but have been fine, some nausea and heartburn only. Am using cold cap and have no hair loss or thinning. Have 4 cycles of herceptin and Phesbo after Docetaxel and have been led to believe these targeted drugs don't cause hair loss.  Does anyone know if this is correct? I have invasive ducal carcinoma and Her2 +, not in lymph nodes, and will be having a lumpectomy afrer chemo then a course of radiotherapy. I am using a product called Talika for eyebrows and eyelashes which you use twice a day and seems to be helping me keep them in place. Happy to chat anytime x

Hi Suzyq71, it good to hear that you have been doing well on chemo, with minimal side effects. I wish I had know about the product for eyebrows and lashes. After 5 cycles of chemo, I am now starting to lose mine, so too late for me. I had to have 3 EC and 4 docetaxel, just 2 left to go now.I too was diagnosed with invasive ductal carcinoma and am HER2 positive. I have started phesgo injections, when I went onto the docetaxel. I apparently have to continue with the injections for a year. Also recently told I will be starting bone infusions in August, which will be every 6 months. I will be having a mastectomy a few weeks after I finish chemo. Then radiotherapy and hormone blockers for 5-10 years. Good to hear the cold cap is working for you. I didn't try it as already prone to headaches. Wish you well on the rest of your journey. Xx

I haven't been told anything other than the 4 red chemo and 4 targeted drugs. I give myself filgrastim injections for 7 days after chemo. No mention yet of other drugs that I may need to take or bone infusions. Just wishing I was further along this journey. Wishing you all the best going forward xx

I too have the filgrastim injections for 7 days, but get hubby to do mine. Only told about bone infusions a couple of weeks ago, it did come as a bit of a surprise. It could be an age thing as I'm 61, not sure everyone has to have them. Most people I've spoken to say they're having the phesgo injections for about a year, again maybe this does vary. It is a long journey and I'll be glad to finish chemo on the 9th July. But starting to get a bit nervous about the surgery, as it gets closer. Think I'm having reconstruction at the same time  so quite a big operation. Take care and keep in touch, I'd like to know how you're doing. Xx

I too have the filgrastim injections for 7 days, but get hubby to do mine. Only told about bone infusions a couple of weeks ago, it did come as a bit of a surprise. It could be an age thing as I'm 61, not sure everyone has to have them. Most people I've spoken to say they're having the phesgo injections for about a year, again maybe this does vary. It is a long journey and I'll be glad to finish chemo on the 9th July. But starting to get a bit nervous about the surgery, as it gets closer. Think I'm having reconstruction at the same time  so quite a big operation. Take care and keep in touch, I'd like to know how you're doing. Xx

I have only started this journey and cannot wait to get the chemo part finished. The cancer is underneath my nipple so that's to come off with any remaining breast tissue but I'm OK with that, will be in and out of hospital the same day. Hopefully your surgery recovery isn't too bad and being nervous is normal. I'm feeling OK as I've not had any hair loss yet, that's the part that makes me anxious even though I have a wig and turbans on standby. Will probably ask my cancer nurse about bone injections just to see what's planned for me, so much info to take on board at the minute. Will check back in soon to see how you are doing, keep well xx