Hi I’ve just joined the forum having been diagnosed last week. I would love to hear from anyone on a similar journey. Please read my profile for some info.
I was diagnosed with Stage 3 vulva cancer a couple of years ago. I've had surgery, radiotherapy and chemotherapy. If you've got any questions or just want to chat about it feel free to message me. X
Hi Hayley, well scan of liver back with no cancer so great news! I’m starting treatment this week but tomorrow is a bank holiday so later in week date to be confirmed. I do feel my tummy has swollen probably to do with the lymph nodes in my groin.
I am at peace with it all but feeling as if life has stood still can’t settle myself to do anything! Just want to get started.
That's good news you have been through your treatment and doing well. I've just been diagnosed with early stage vulval cancer and awaiting surgery. The hospital don't do sentinel lymph node biopsy so having to have full removal both sides of groin. This poses a huge lymphoedema risk and wondered how you were managing your risk after surgery.
That's good news you have been through your treatment and doing well. I've just been diagnosed with early stage vulval cancer and awaiting surgery. The hospital don't do sentinel lymph node biopsy so having to have full removal both sides of groin. This poses a huge lymphoedema risk and wondered how you were managing your risk after surgery.
I was told that the risk of me developing lymphoedema was 50% - thankfully not developed yet although my thighs do look bigger lol but that could just be the weight gain from menopause. I was told that moisturising my skin was very important so I use Aveeno cream/body wash.... pretty much every Aveeno product out there! I was also advised to avoid using razors to shave my legs so I purchased an electric shaver. I'm careful with any cuts I get on my legs and make sure that I clean them straight away. When I'm sitting at home I also try to keep my legs elevated. I'll probably get it at some point knowing my luck lol. Do you know when your surgery is? Is it just surgery or are you also having radiotherapy/chemo? Xx
Many thanks, Hayley. Reading about your experiences is very helpful and reassuring. I'm hoping it will be just surgery but all depends on the lymph node biopsy. Good to hear you are coping with everything so positively. I'll try to follow your example.
