Cervical cancer & hospital phobia

Hi

I have been diagnosed with cervical cancer. I went to the GP in January for bleeding during/after sex. She referred me on a tww due to the appearance of my cervix. She also did a smear at the time (I had never had one before, don’t come at me, I will explain soon). This then came back as high grade changes. 

I am medical/hospital phobic. I cannot cope with anything medical for myself. I shake, cry, can’t breathe. I avoid it at all costs. I even had my children at home. Doing this took an enormous amount of strength and it has broken me so far. 

anyway. I was able to have the lletz under general anaesthetic. This has come back that I have cervical cancer. I am to have a CT and MRI to see how bad it is. 

I don’t think I will be able to cope mentally with treatment so I am praying for it to be small so that I can ‘just’ have a hysterectomy. 

I am completely terrified. In a total state. 
Does anyone have any kind words, or experience with a hysterectomy/ treatment ? 

  • Welcome to Cancer Chat FrenchieFrankenstein although I'm sorry to hear you have cervical cancer.

    I know this must be incredibly difficult but you've done so well so far.

    If you can, try to take things one step at a time. Much easier said than done I know, but it may help make this a little bit easier to cope with if you can break it down in to stages.

    Our members know just how tough this journey can be, so you are not alone, and I'm sure some of them will stop by soon to share their experiences and offer their words of support and advice.

    If you feel it may help to discuss any of this with one of our cancer nurses, you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. Our nurses are very approachable and will do all they can to support you at this time.

    We're thinking of you FrenchieFrankenstein, and wishing you all the best with your MRI and CT scan.

    Kind regards,

    Steph, Cancer Chat Moderator

  • You have been so brave so far considering your phobia. To go to the doctor and lletz shows how strong you can be.

    I was diagnosed with stage 2b cervical cancer in August 23, so due to the grade, a hysterectomy wasn't an option, so I only have experience of the external/internal radiotherapy and the chemo. As I'm sure you know, everyone's responce to the treatment is different, but for me I didn't have any sickness or hair lloss but I suffered a few times with diarrhoea during treatment, bit the tablets they provided really helped. Fatigue was the biggest thing that effected me though.

    I was petrified of the final part of the treatment, internal radiotherapy, but I got through it and it was nowhere neer as bad as I was imagining. It was uncomfortable,  but if you need any pain relief they will give it.

    Sending positive thoughts your way. If you feel able to, please put an update to let us know once you get your results x

  • Offline in reply to Lou67

    I should also have said that I do need to go for a wee more urgently now since treatment,  but this is improving.

    Take care and all the best for your results, you can do this xx

  • I’m just so frightened of having to go for treatment daily for so long. Are you ok now? I’m not sure of the terminology, in remission?

    I really really need it to be small. I am just in such a constant state of panic, I can’t eat or anything. I managed to do the CT yesterday. The nurse at my appointment on Monday said I wouldn’t have to do the dye, but when I got there they said they did. I’m terrified of every single twinge. 

    im just so petrified that it’ll be a long course of treatment and I just can’t mentally cope with it. We have our first holiday abroad since 21 booked for the end of July too and I will be absolutely heartbroken if we can’t go. My poor kids, missing out because of me. I just don’t want to do any of this, I’m so upset. I am so desperate for it to be surgical. 

    I have such intrusive thoughts about what I’d have to do if they told me it has to be treatment. 

  • It must be so difficult to go through this with the added stress of your phobia,  but you will get through it.

    I have been for my 3 month scan and it did show no sign of cancer.  I will still be going back for scans for the next few years, but it is good news.

    The treatment I had was 25 sessions external radiotherapy over 5 weeks, plus 5 sessions of chemotherapy, one per week. Which when I've spoke to anyone else seems to be standard for cervical cancer, but I'm not 100% sure if it is. Then the internal radiotherapy was during one overnight stay in hospital. 

    It did feel intense for a month, but compared to some treatments for other cancers, its quite a short time.

    It easy for me to say, but taking each step at a time is the best way.

    I hope you get your treatment plan soon xx