Plasma cell myeloma

I was diagnosed with myeloma last year and told I was put on watch and wait, I had two inperson appointments and then one last September which was over the phone and now 6 months later still not heard from anybody, I have pains all over. I was told my diagnosis was terminal and I guess that's why no one's bothered. Has anyone else had this problem.

  • Welcome to Cancer Chat Degsy although I'm so sorry to hear no-one has been in touch with you since September.

    If you have any contact numbers for the medical team that you saw in person or spoke to over the phone, do try getting in touch with them or their secretary to find out what's going on. You could ask your GP to look in to this for you as well.

    Hopefully some of our members will offer their thoughts and advice to you soon but if you'd like to run any of this by one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They are very insightful and will do all they can to help.

    I'm not sure if you are already aware or in touch with this charity, but Myeloma UK should also be able to offer you further support and advice.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Goodness Degsyl that scares me that no one has been in contact with you even just to test your blood again. I was told on the 5th February 2024 that I had myeloma since then I have had numerous blood tests MRI and CT scans bone marrow biopsy nerve conduction tests and now I have to have a skin biopsy this Friday 29th March. I too have pains in my back and legs which I put down to chronic arthritis. I still have not received any results of all the tests I’ve had. I hope you get some answers soon you definitely need to speak to someone. Marion