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Starting Chemo with DPD Deficiency

Lilsimbax
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Does anyone have any experience with dpd deficiency? 3 months worth of IV chemo every fortnight and 10 days of oral chemo each fortnight (Capox) are ahead at 50% reduced dose.  Just wondering if anyone else has managed 6 treatments of chemo with this deficiency.  I can barely find any details of anyones else’s experiences with this anywhere.  Any experiences or knowledge gratefully received. 

  • Hi Lilsimbax and welcome to Cancer Chat.

    I've just had a quick look through the forum and unfortunately, couldn't find anyone with a DPD deficiency within the community at the moment, but I'm sure if any of our members have any experiences or advice to share, they will stop by when they can to do so.

    If you'd like to discuss any worries or concerns you have about this with one of our cancer nurses, you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very supportive, and insightful, and will do all they can to help you at this time.

    I'm not sure exactly when you're starting your chemo, but I want to wish you the very best of luck and let you know we'll be thinking of you.

    Kind regards,

    Steph, Cancer Chat Moderator

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