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Endometrial Cancer

Twinkletoes3
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Hiya. I guess I'm looking for some advice, help, someone who knows what I'm going through, I'm not actually sure to be honest.Ibwas referred to Gynaecology through the pandemic and ended up getting a call to invite me in for an appointment. While I was being checked over my consultant decided to take a biopsy of the lining of my womb because it was very thick. Anyway, that came back as precancerous and he told me I'd need to have a day op where they would put me to sleep and do a hysteroscopy (take photos and more biopsies) and while they were rummaging around he wanted to fit the mirena with hormal drugs. Anyway, I had the day op, and fast forward a wee while later and my results were in. I was called up to the hospital and I was told it was cancerous. Because of my weight, doing a full hysterectomy might not be an option, plus, during the day op my stats dropped and I was put on oxygen. Since then my consultant has request that I have a CT scan and an MRI which I have been for already. After speaking with the consultants secretary I was informed that MDT meetings happen every Thurday and I'm down for this Thursday coming and my results and any treatment will ne discussed then and I'll be contacted shortly after. I have so many questions right now...

If I have Endometrial Cancer, is the mirena enough to take this away? I'm reading that it's not!

If a hysterectomy isn't an option because of my weight, does that mean that chemo and radiotherapy is the way forward? He did mention that but my head was all over the place and so was my partners. 

All my family know except our 11 year old, how do you tell the wee ones in your life? I've kept this from him until o know exactly what's going on and what treatment I might be getting! 

Is hair loss always a factor? I've read about people using some sort of gloves, socks and a cap during treatment, what are these for?

I could go on and on but I won't. Doesn't anyone have anything they can share with me? Experiences? Advice? I'd literally take everything on board and would appreciate it so much. 

Alison x

  • Hi Alison,

    Welcome to Cancer Chat. It sounds like you've been through a lot with this recently and I can completely understand there is a lot to process and you have a lot of questions.

    I hope it's not long to wait before you find out more following the meeting. Ahead of your next appointment, it would be a good idea to write down any questions you think of, so that you remember to discuss everything - and you can then write down what they say.

    I can't help with all your questions unfortunately. We have some information on our website about talking to children about cancer, which may be helpful.

    Similarly we have a section on hair loss and cancer treatment. The cap you are referring to may be the cold cap, and you can see more about that on this separate page about hair loss.

    You may find it helpful to give our nurses a call to talk anything else through. If you'd like to do this, you can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    Aside from this, hopefully you'll get some more replies here soon. You can also search the forum (using the bar at the top of the page) for other relevant discussions and people to connect with, if you would like to.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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