Kidney cancer

I have been diagnosed with kidney cancer and need an op to remove the 14 cm tumour, radical open surgery to remove kidney . I am currently classed at a T3A patient but I guess that could get worse after Op . I have a great family but I can’t go 2 mins without being absorbed in this and I feel my prognosis is probably months not years .  I wake up during the night and then reality hits me and I get very panicky and anxious. 

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  • Hello, I came here looking for someone who is recently diagnosed with kidney cancer as I am. My initial thoughts upon receiving my diagnosis was feeling numb. It was a surreal feeling, like someone talking about somebody else describing their cancer to me. Once the news sunk in about an hour later, I was shaking and full of nerves. I did not want to discuss my diagnosis with anyone, even to my own husband. I curled up and cried. The next day I went back to work, I work at Heathrow airport, and its always that busy that my mind must remain focus on the job. As you said, the nights are the most difficult. Yes, it is.  Sometimes I don't sleep at all. I fill my time by binge watching series on Netflix or Disney. Or do digital arts, Colour by Numbers, especially the Mystery ones (which slowly reveals what the art work will be). I have 5.7cm lesion, on my left kidney on the upper pole. I saw the 3D scan and its prominence on top of the kidney. T1b but a possibility of T3a due to a small curve that is not visible on the scan. Initial MDT meeting seems to think it is ccRCC. I keep searching for prognosis online. But my Oncologist said it is 5 years as a guideline. During my pre assessment this week, the nurse said all the kidney cancers she has seen, all made it through without recurrence in the last 5 years. Even with all the reassurances in the world, I have been preparing myself for the worst but hoping for the best. I have mentioned to a few people at work including my line manager, they all said that I have a very strong psychological strength to keep coming back to work when they thought I should be relaxing at home waiting for my surgery which is scheduled on 15th April. I said, work keeps me strong, because I dont have the time to think of what lies ahead. I hope you can find the strength to  fight and see this through and know  that you are not alone.  (A quote from our very own Princess of Wales). 

  • I had a nephrectomy three years ago today for a stage three tumour on my right kidney which was also atrophic. My recovery was quite rapid and I'm now awaiting the results of my final post operative dean.

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